Consultation on Global Alliance for Rare Diseases framework and guidelines.

  • Narcyz Ghinea (Consultant)

    Activity: End user engagement and expertise › Government or international organisation inquiry submission

    Description

    This initiative was organized by EVR Consulting and led by its President, Harpreet Ram. I was invited to provide feedback as an expert in the policy and ethics of access to high-cost medications.
    Period2022
    Work forGlobal Alliance for Rare Diseases

    Documents & Links