Projects per year
Personal profile
Biography
Carolyn is a Senior Lecturer at Macquarie Law School where she teaches and researches in the area of public law, with a focus on human rights and open government. Carolyn regularly provides expert advice on privacy and the handling of personal information to government and non-government organisations. She is currently engaged in a major project examining the ethics, law and policy of sharing personal information in the records of general practioners for research.
As well as a significant track record in interdisciplinary legal research, Carolyn brings to her teaching and research a practical perspective, drawing on two decades of providing high level legal and policy advice to state and federal governments, including NSW Cabinet Office and the federal Attorney-General's Department. Immediately prior to joining Macquarie University, she worked with the Australian Law Reform Commission on the following inquiries: Essentially Yours: The Protection of Genetic Information in Australia (ALRC Report 96) 2003; Same Crime, Same Time: Sentencing of Federal Offenders (ALRC Report 103) 2006; For Your Information: Australian Privacy Law and Practice (ALRC Report 108) 2008; and Secrecy Laws and Open Government in Australia (ALRC Report 112) 2009.
Research interests
- Public law and open government
- Freedom of information
- Secrecy laws and culture
- Transparency
- Accountability
- Privacy and the use of personal information
- Privacy legislation and regulation
- Data linkage, including for research
- Human rights law
- International human rights law and institutions
- National human rights institutions
- Bills of rights
Research student supervision
I am happy to supervise PhD, MPhil and Masters of Research (MRes) students on topics that align with my reserearch interests, as indicated above. I would be particularly interested in supervising projects on the collection, use and disclosure of personal information in the health sector; and the ethics, law and policy of new technologies in the health sector, for example, the increasing use of data linkage for research and the provision of health care. If you have a proposed research project that aligns with my research interests I would be happy to assist you to develop your application and research proposal.
Past students
- MRes: Joanna Mitchell, The Right to be Heard: Children and the Administrative Appeals Tribunal (2022)
- PhD: Dr Danielle Moon, Instrument, Culture and Myth: Disclosure of 'Thinking Process Material' under the Freedom of Information Act 1982 (Cth) (2020)
- MRes: Paul Maluga, Let Me and My Metadata Alone: Australia's Compliance with Article 17 of the International Covenant on Civil and Political Rights (2017)
- PhD: Dr Holly Doel-Mackaway, 'Just Ask Us. Come and See Us': The Participation of Aboriginal Children and Young People in Law and Policy Development (2016)
- MRes: Danielle Moon, A Matter of Balance: Freedom of Information and Deliberative Documents (2015)
Research engagement
Macquarie University Human Research Ethics Committee (Human Sciences & Humanities) legal member 2014 to present
Macquarie Law School HDR Committee member 2014 to 2018
Teaching
Education/Academic qualification
Law, Doctor of Philosophy, Access to Government Data Collections of Personal Information for Health Research: Better Decision Making, Macquarie University
21 Mar 2011 → 27 Sept 2022
Award Date: 27 Oct 2022
Law, Bachelor of Laws, Australian National University
Award Date: 14 May 1986
Asian Studies, Bachelor of Arts, Australian National University
Award Date: 7 Sept 1984
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Collaborations and top research areas from the last five years
Projects
- 2 Finished
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Private data, public good: data linkage for research: ethics, law and policy
11/07/16 → 23/12/16
Project: Research
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Macquarie University and University of Western Australia: development of a framework for secondary use of My Health record system data
Adams, C., Flack, F. & Allen, J., 17 Nov 2017, 12 p. Australian Government Department of Health.Research output: Other contribution
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Submission to the Productivity Commission Inquiry: Data Availability and Use
Adams, C. & Allen, J., 29 Jul 2016, 13 p. Productivity Commission.Research output: Other contribution
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Government databases and public health research: facilitating access in the public interest
Adams, C. & Allen, J., Jun 2014, In: Journal of Law and Medicine. 21, 4, p. 957-972 16 p.Research output: Contribution to journal › Article › peer-review
4 Citations (Scopus) -
Data custodians and decision-making: a right to access government-held databases for research?
Adams, C. & Allen, J., 2014, In: AIAL Forum. 76, p. 11-19 9 p.Research output: Contribution to journal › Conference paper › peer-review
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Sharing linked data for health research: toward better decision making
Adams, C., Allen, J. & Flack, F., 2022, Cambridge, UK: Cambridge University Press (CUP). 273 p. (Cambridge Bioethics and Law)Research output: Book/Report › Book › peer-review
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Sharing Linked Data for Health Research: Better Decision Making
Carolyn Adams (Speaker) & Felicity Flack (Speaker)
19 Nov 2022Activity: Talk or presentation › Presentation
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Qualitative Research: Ethics and Beyond, Macquarie Law School Seminar Series
Carolyn Adams (Speaker) & Holly Doel-Mackaway (Speaker)
28 Aug 2019Activity: Talk or presentation › Presentation
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The Use of Big Data for Health Research: Building and Maintaining Social Licence
Carolyn Adams (Speaker)
5 Mar 2019Activity: Talk or presentation › Invited talk