Projects per year
Personal profile
Biography
Completed a PhD thesis by publication with the University of Sydney in September 2018. Five published papers make up this thesis. Thesis titled 'Exploring the whole family experience living with younger onset dementia from a social model perspective.'
Is a Physiotherapist, qualified in 1986 with extensive clinical experience working with people living with acute onset and degenerative neurological conditions in the community both in the UK and Australia. She is very interested in the lived experiences of people living with neurological impairments and their families.
Research engagement
Currently working as a Postdoctoral Research Fellow at the Australian Institute of Health Innovation, Implementation Science Stream.
Current mixed methods research projects conducting an implementation evaluation of two integrated models of care:
Rural Kids Guided Personalised Service (RuralKidsGPS), providing care coordination to children living with medical complexity in four rural local health districts in New South Wales, Australia
Motor Neurone Disease multidiciplinary clinic in a regional area of New South Wales, Australia
Research interests
Lived experiences and social impact of living with neurological impairments in the community from a personal, family member and whole family perspective. Understanding the needs of the whole family living with parental and childhood illness.
Exploring ways to use the social model of disability (SMOD) framework to improve societal, health care and social care understanding of living with impairments. Using principles of SMOD to create socially focused services and health interventions. Raising awareness of socially constructed disablement and what needs to be changed to support enablement.
Implementation science provides the strategies to promote co-created and co-produced crucial change within health care and improved well being. Translation of evidence, uptake of evidence, acquisition and dissemination.
Integrated models of care living with complex and chronic conditions. Developing ways to improve integrated care for everyone to ensure no one is disadvantaged by fragmented care and non cross sector collaborations and practices.
Developing pathways of care and support for people living with MND across the current service landscape
Education/Academic qualification
Younger onset dementia , PhD in Philosophy, Exploring the lived experiences of children and young people having parents living with younger onset dementia , University of Sydney
1 Jul 2015 → 24 Sept 2018
Award Date: 29 Sept 2018
Physiotherapy, Graduate Diploma in Physiotherapy
External positions
Honorary Conjoint Scholar , Central Coast Local Health District (CCLHD)
2022 → …
Central Coast Research Institute
2022 → …
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Collaborations and top research areas from the last five years
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Working together: innovation to improve Emergency Department (ED) performance, and patient outcomes and experience for five complex consumer cohorts
Clay-Williams, R., Braithwaite, J., Harrison, R., Zurynski, Y., Hibbert, P., Mitchell, R., Cutler, H., Vukasovic, M., Ali, R., Holt, L., Gillies, D., Ellis, L., Austin, E., Churruca, K., Walpola, R., Gwynne, K., Hutchinson, K., Carrigan, A., Newman, B., De los Santos, A., Murphy, M., Salmon, P., Hrast, J., Griggs, S., Long, J., Cheek, C., Francis-Auton, E., Hayba, N. & Richardson, L.
1/04/22 → 31/03/27
Project: Research
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Evaluation of an implemented integrated multidisciplinary clinic for people living with motor neurone disease on the Central Coast
Hutchinson, K., Goodwin, N., Schutz, A., Hogden , A. & Carr, S.
3/09/21 → …
Project: Research
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Stage 2- RuralKidsGPS - delivering equitable care to children in rural NSW
Lingam, R., Zurynski, Y., Rana, R. & Hutchinson, K.
23/08/24 → 22/10/24
Project: Research
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Evaluation of an implemented integrated multidisciplinary clinic for people living with motor neurone disease on the Central Coast
Hutchinson, K., Schutz, A., Hogden , A., Goodwin, N. & Carr, S.
3/09/21 → 10/02/23
Project: Research
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Connecting care closer to home: evaluation of a regional motor neurone disease multidisciplinary clinic
Hutchinson, K., Fisher, G., Schutz, A., Carr, S., Heard, S., Reynolds, M., Goodwin, N. & Hogden, A., 2 Apr 2025, In: Healthcare (Basel, Switzerland). 13, 7, p. 1-20 20 p., 801.Research output: Contribution to journal › Article › peer-review
Open AccessFile5 Downloads (Pure) -
Family experiences of integrated care for children with medical complexity: a scoping review
Zurynski, Y., Hutchinson, K., Kang, Y., Vizheh, M. & de Groot, A., May 2025, In: Child: Care, Health and Development. 51, 3, p. 1-14 14 p., e70091.Research output: Contribution to journal › Review article › peer-review
Open AccessFile5 Downloads (Pure) -
Improving dementia and palliative care through the co-design of an integrated model of care
Triandafilidis, Z., Goodwin, N., Hutchinson, K., Jeong, S. Y-S., Lewis, S., Hodyl, N., Quick, G., Hensby, J. & Montague, A., Jan 2025, In: Australian Health Review. 49, 1, p. 1-6 6 p., AH24123.Research output: Contribution to journal › Article › peer-review
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Breaking down barriers: exploring the involvement of people with lived experience in MND research in Australia
Hough, J., Blizzard, C., Graco, M., Malpress, K., Ngo, S., Hutchinson, K. & Hartmann, J., 2024, In: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration. 25, Supplement 1, p. 253 1 p., CLT-37.Research output: Contribution to journal › Meeting abstract › peer-review
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Breaking down barriers: exploring the involvement of people with lived experience in MND research Australia
Hough, J., Hutchinson, K., Graco, M., Keith, M., Ngo, S. & Blizzard, C., 2024.Research output: Contribution to conference › Abstract › peer-review
Prizes
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Finalist in the CCLHD Research Excellence Awards
Hutchinson, Karen (Recipient), Fisher, Georgia (Recipient), Goodwin, Nicholas (Recipient), Schutz, Anna (Recipient), Carr, Sally (Recipient), Hogden, Anne (Recipient), Reynolds, Molly (Recipient) & Heard, Sophie (Recipient), 2024
Prize
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Health care MND research in Australia
Karen Hutchinson (Speaker)
26 Aug 2024Activity: Talk or presentation › Invited talk
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MND Research Open Forum - an extended Q&A session
Karen Hutchinson (Speaker)
6 Aug 2024Activity: Talk or presentation › Invited talk
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EPIC Fails in Integrated Care
Karen Hutchinson (Speaker)
22 May 2024Activity: Talk or presentation › Invited talk
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2023 CCLHD Research Networking – Meet Our Research Experts
Karen Hutchinson (Speaker)
2023Activity: Talk or presentation › Invited talk
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Carer Knowledge Exchange How and why to participate in research for family and friend carers
Karen Hutchinson (Consultant)
19 Oct 2023Activity: End user engagement and expertise › Advisory position
Press/Media
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Ground Hog day in emergency departments
Elizabeth Austin, Nadia Lanos, Karen Hutchinson, Susan Barnes, Diana Fajardo-Pulido , Colin Ruane & Robyn Clay-Williams
5/05/23
1 item of Media coverage
Press/Media: Research
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Drug-resistant epilepsy: overlooked and underdiagnosed
Frances Rapport, Geoffrey K. Herkes & Karen Hutchinson
17/08/20
1 Media contribution
Press/Media: Other