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Personal profile

Biography

Completed a PhD thesis by publication with the University of Sydney in September 2018. Five published papers make up this thesis. Thesis titled  'Exploring the whole family experience living with younger onset dementia from a social model perspective.'

Is a Physiotherapist, qualified in 1986 with extensive clinical experience working with people living with acute onset and degenerative neurological conditions in the community both in the UK and Australia. She is very interested in the lived experiences of people living with neurological impairments and their families.

 

  

Research engagement

Currently working as a Postdoctoral Research Fellow at the Australian Institute of Health Innovation, Implementation Science Stream.

Current mixed methods research project:

‘Absent voices’: Feasibility study exploring whole family experiences of living with parental refractory epilepsy to inform service development

Determining the role and responsibilities of the Australian Epilepsy Nurse (EN) in the management of epilepsy including refractory across primary and community care

Research interests

Lived experiences and social impact of living with neurological impairments in the community from a personal, family member and whole family perspective. Understanding the needs of the whole family living with parental illness, especially with children and young people involved.  

Exploring ways to use the social model of disability framework to improve societal, health care and social care understanding of living with impairments.  Using principles of SMOD to create socially focused services and health interventions. Raising awareness of socially constructed disablement and what needs to be changed to support enablement.

Implementation science provides the strategies to promote co-created and co-produced crucial change within health care and improved well being. Translation of evidence, uptake of evidence, acquisition and dissemination.  

Integrated models of care living with complex and chronic neurological conditions. Developing ways to improve integrated care for everyone to ensure no one is disadvantaged by fragmented care and non cross sector collaborations and practices. 

ences and pathways of care and support for people living with MND across the cutrrent service landscape

Education/Academic qualification

Younger onset dementia , PhD in Philosophy, Sydney Medical School, The University of Sydney, Camperdown, New South Wales, Australia.

1 Jul 201524 Sep 2018

Physiotherapy, Graduate Diploma in Physiotherapy

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Projects

Research Outputs

  • 49 Citations
  • 4 h-Index
  • 11 Article
  • 3 Abstract
  • 1 Chapter
  • 1 Poster
Open Access
File
  • 3 Downloads (Pure)

    Co-creation of a family-focused service model living with younger onset dementia

    Hutchinson, K., Roberts, C., Roach, P. & Kurrle, S., 1 May 2020, In : Dementia. 19, 4, p. 1029-1050 22 p.

    Research output: Contribution to journalArticle

  • 1 Citation (Scopus)

    How can we improve patient-centered care of motor neuron disease?

    Hogden, A., Paynter, C. & Hutchinson, K., Apr 2020, In : Neurodegenerative Disease Management. 10, 2, p. 91-97 7 p.

    Research output: Contribution to journalArticle

  • Open Access
    File
  • 8 Downloads (Pure)

    Feeling invisible and ignored: families’ experiences of marginalisation living with younger onset dementia

    Hutchinson, K., Roberts, C. & Roach, P., 2019, Dementia as social experience: valuing life and care. Macdonald, G. & Mears, J. (eds.). Abingdon: Routledge, p. 46-66 21 p. (Routledge Studies in the Sociology of Health and Illness).

    Research output: Chapter in Book/Report/Conference proceedingChapter

    Activities

    • 2 Editorial work
    • 1 Invited talk

    Public Health Research and Practice (Journal)

    Karen Hutchinson (Reviewer)
    1 Jul 2019 → …

    Activity: Publication peer-review and editorial workEditorial work

    Qualitative Health Research (Journal)

    Karen Hutchinson (Reviewer)
    28 Jul 2019 → …

    Activity: Publication peer-review and editorial workEditorial work

    Press / Media

    Drug-resistant epilepsy: overlooked and underdiagnosed

    Frances Rapport, Geoffrey K. Herkes & Karen Hutchinson

    17/08/20

    1 Media contribution

    Press/Media: Other