• 36 Citations
  • 3 h-Index

Research output per year

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Personal profile


Completed a PhD thesis by publication with the University of Sydney in September 2018. Five published papers make up this thesis. Thesis titled  'Exploring the whole family experience living with younger onset dementia from a social model perspective.'

Is a Physiotherapist, qualified in 1986 with extensive clinical experience working with people living with acute onset and degenerative neurological conditions in the community both in the UK and Australia. She is very interested in the lived experiences of people living with neurological impairments and their families.



Research engagement

Currently working as a Postdoctoral Research Fellow at the Australian Institute of Health Innovation, Implementation Science Stream.

Current qualitative research project:

Identification and referrral for refractory epilepsy patients at primary and general neurology care: A feasibility study in New south Wales

Research interests

Lived experiences and social impact of living with neurological impairments in the community from a personal, family member and whole family perspective. Understanding the needs of the whole family living with parental illness, especially with children and young people involved.  

Exploring ways to use the social model of disability framework to improve societal, health care and social care understanding of living with impairments.  Using principles of SMOD to create socially focused services and health interventions. Raising awareness of socially constructed disablement and what needs to be changed to support enablement.

Implementation science provides the strategies to promote co-created and co-produced crucial change within health care and improved well being. Translation of evidence, uptake of evidence, acquisition and dissemination.  

Education/Academic qualification

Younger onset dementia , PhD in Philosophy, Sydney Medical School, The University of Sydney, Camperdown, New South Wales, Australia.

1 Jul 201524 Sep 2018

Physiotherapy, Graduate Diploma in Physiotherapy

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Research Outputs

  • 36 Citations
  • 3 h-Index
  • 10 Article
  • 2 Abstract
  • 1 Chapter
  • 1 Poster

Co-creation of a family-focused service model living with younger onset dementia

Hutchinson, K., Roberts, C., Roach, P. & Kurrle, S., 1 May 2020, In : Dementia. 19, 4, p. 1029-1050 22 p.

Research output: Contribution to journalArticle

  • 1 Citation (Scopus)

    How can we improve patient-centered care of motor neuron disease?

    Hogden, A., Paynter, C. & Hutchinson, K., Apr 2020, In : Neurodegenerative Disease Management. 10, 2, p. 91-97 7 p.

    Research output: Contribution to journalArticle

  • Feeling invisible and ignored: families’ experiences of marginalisation living with younger onset dementia

    Hutchinson, K., Roberts, C. & Roach, P., 2019, Dementia as social experience: valuing life and care. Macdonald, G. & Mears, J. (eds.). Abingdon: Routledge, p. 46-66 21 p. (Routledge Studies in the Sociology of Health and Illness).

    Research output: Chapter in Book/Report/Conference proceedingChapter


    • 2 Editorial work
    • 1 Invited talk

    Public Health Research and Practice (Journal)

    Karen Hutchinson (Reviewer)
    1 Jul 2019 → …

    Activity: Publication peer-review and editorial workEditorial work

    Qualitative Health Research (Journal)

    Karen Hutchinson (Reviewer)
    28 Jul 2019 → …

    Activity: Publication peer-review and editorial workEditorial work