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The Rare Awareness, Education, Support and Training (RArEST) project

  • Kamphuis, Helen (Primary Chief Investigator)

Project: Research

Project Details

Description

The Rare Awareness, Education, Support and Training (RArEST) project will develop and deliver rare disease awareness resources, education, support, and training with a focus on mental health, and social and emotional wellbeing.
Stream 3 of the RArEST project is lead by Associate Professor Zurynski. The focus in Stream 3 is on building capacity in meaningful consumer engagement and codesign throughout the Rare Disease sector.
Short titleRArEST
StatusNot started