A conceptual framework of digital empowerment of informal carers

An expert elicitation study

Tsholofelo Sethibe, Babak Abedin, David Milne, Olivera Marjanovic

Research output: Chapter in Book/Report/Conference proceedingConference proceeding contribution


Many studies on online health communities (OHCs) have focused on patients' well-being. The capabilities of OHCs to effect other psychosocial states like empowerment have been under-explored. Additionally, the study of empowerment of other healthcare stakeholders, specifically informal carers, has not attracted much study. This is despite evidence that carers use OHCs as an information and self-care resource in dealing with the stress and strain of caregiving. It is not clear how moderator support may influence carer empowerment. We propose a conceptual model to explore how moderated OHCs may influence empowerment of carers. In order to assess the model and support its robustness, this paper uses expert interviews of academics and industry professionals, with the view to focusing the research as well as operationalise the model. Results suggest a favourable acceptance of the model by experts, and thematic analysis of their conversations generated an additional construct.

Original languageEnglish
Title of host publicationPACIS 2019 - Secure ICT Platform for the 4th Industrial Revolution
Subtitle of host publicationProceedings of the 23rd Pacific Asia Conference on Information Systems
EditorsDongming Xu, James Jiang, Hee-Woong Kim
Place of PublicationXian, China
PublisherAssociation for Information Systems
Number of pages14
Publication statusPublished - 2019
Externally publishedYes
Event23rd Pacific-Asia Conference on Information Systems, PACIS 2019 - Xi'an, China
Duration: 8 Jul 201912 Jul 2019


Conference23rd Pacific-Asia Conference on Information Systems, PACIS 2019


  • Digital empowerment
  • Informal carer
  • Moderator support
  • Online health communities
  • Peer-to-peer networks

Fingerprint Dive into the research topics of 'A conceptual framework of digital empowerment of informal carers: An expert elicitation study'. Together they form a unique fingerprint.

Cite this