A methodology for identifying high-need, high-cost patient personas for international comparisons

Jose F. Figueroa*, Kathryn E. Horneffer, Kristen Riley, Olukorede Abiona, Mina Arvin, Femke Atsma, Enrique Bernal-Delgado, Carl Rudolf Blankart, Nicholas Bowden, Sarah Deeny, Francisco Estupiñán-Romero, Robin Gauld, Tonya Moen Hansen, Philip Haywood, Nils Janlov, Hannah Knight, Luca Lorenzoni, Alberto Marino, Zeynep Or, Leila PelletDuncan Orlander, Anne Penneau, Andrew J. Schoenfeld, Kosta Shatrov, Kjersti Eeg Skudal, Mai Stafford, Onno van de Galien, Kees Van Gool, Walter P. Wodchis, Marit Tanke, Ashish K. Jha, Irene Papanicolas

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

5 Citations (Scopus)
28 Downloads (Pure)

Abstract

Objective: To establish a methodological approach to compare two high-need, high-cost (HNHC) patient personas internationally.

Data sources: Linked individual-level administrative data from the inpatient and outpatient sectors compiled by the International Collaborative on Costs, Outcomes, and Needs in Care (ICCONIC) across 11 countries: Australia, Canada, England, France, Germany, the Netherlands, New Zealand, Spain, Sweden, Switzerland, and the United States.

Study design: We outline a methodological approach to identify HNHC patient types for international comparisons that reflect complex, priority populations defined by the National Academy of Medicine. We define two patient profiles using accessible patient-level datasets linked across different domains of care—hospital care, primary care, outpatient specialty care, post-acute rehabilitative care, long-term care, home-health care, and outpatient drugs. The personas include a frail older adult with a hip fracture with subsequent hip replacement and an older person with complex multimorbidity, including heart failure and diabetes. We demonstrate their comparability by examining the characteristics and clinical diagnoses captured across countries.

Data collection/extraction methods: Data collected by ICCONIC partners.

Principal findings: Across 11 countries, the identification of HNHC patient personas was feasible to examine variations in healthcare utilization, spending, and patient outcomes. The ability of countries to examine linked, individual-level data varied, with the Netherlands, Canada, and Germany able to comprehensively examine care across all seven domains, whereas other countries such as England, Switzerland, and New Zealand were more limited. All countries were able to identify a hip fracture persona and a heart failure persona. Patient characteristics were reassuringly similar across countries.

Conclusion: Although there are cross-country differences in the availability and structure of data sources, countries had the ability to effectively identify comparable HNHC personas for international study. This work serves as the methodological paper for six accompanying papers examining differences in spending, utilization, and outcomes for these personas across countries.

Original languageEnglish
Pages (from-to)1302-1316
Number of pages15
JournalHealth Services Research
Volume56
Issue numberS3
DOIs
Publication statusPublished - Dec 2021
Externally publishedYes

Bibliographical note

Copyright © 2021 The Authors. Health Services Research published by Wiley Periodicals LLC on behalf of Health Research and Educational Trust. Version archived for private and non-commercial use with the permission of the author/s and according to publisher conditions. For further rights please contact the publisher.

Keywords

  • international comparison
  • vignettes

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