A patient-based self-examination survey for staging the severity of lymphoedema

Carol M. Morris, Teresa S. Lee, Sharon A. Czerniec, Andrea J. Mangion

Research output: Contribution to journalArticlepeer-review

4 Citations (Scopus)


Background: A lymphoedema self-assessment tool can help therapists deliver appropriate advice, and prioritise patients who are on waiting lists or who cannot access a lymphoedema clinic. Aims: This pilot study aims to assess the validity and reliability of the Lymphoedema Self-Examination Survey (LYSES) and the relationship between outcomes obtained through LYSES and healthcare professionals' lymphoedema assessment. Methods: Participants with lymphoedema (n=54) completed the LYSES, with the same survey repeated 1 week later. Bioimpedance measurement and International Society of Lymphology (ISL) staging were conducted by lymphoedema healthcare professionals, blinded to each other. Results: There was little agreement between self-reports of elevation being helpful and ISL staging of ≤I (κ= -0.154), substantial agreement between self-reports of indentation and ISL staging of II (κ=0.631), and poor agreement between self-reports and healthcare professionals' reports of skin firmness and skin changes (> ISL stage IIb) (κ=0.089 and κ=0.466, respectively). Lymphoedema severity based on ISL staging was able to account for 31% of the variability in L-Dex rank scores (p=0.005). Conclusion: LYSES cannot be used as an accurate self-report survey.

Original languageEnglish
Pages (from-to)10-15
Number of pages6
JournalJournal of Lymphoedema
Issue number1
Publication statusPublished - 1 Jan 2017
Externally publishedYes


  • Bioimpedance
  • Cancer
  • Lymphoedema
  • Lymphoedema staging
  • Self-report


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