A program to respond to otitis media in remote Australian Aboriginal communities: a qualitative investigation of parent perspectives

Caroline Jones, Mridula Sharma, Samantha Harkus, Catherine McMahon, Mele Taumoepeau, Katherine Demuth, Karen Mattock, Lee Rosas, Raelene Wing, Sulabha Pawar, Anne Hampshire

Research output: Contribution to journalArticleResearchpeer-review

Abstract

Background: Indigenous infants and children in Australia, especially in remote communities, experience early and chronic otitis media (OM) which is difficult to treat and has lifelong impacts in health and education. The LiTTLe Program (Learning to Talk, Talking to Learn) aimed to increase infants' access to spoken language input, teach parents to manage health and hearing problems, and support children's school readiness. This paper aimed to explore caregivers' views about this inclusive, parent-implemented early childhood program for 0-3 years in an Aboriginal community health context. Methods: Data from in-depth, semi-structured interviews with 9 caregivers of 12 children who had participated in the program from one remote Aboriginal community in the Northern Territory are presented. Data were analysed thematically. Caregivers provided overall views on the program. In addition, three key areas of focus in the program are also presented here: speech and language, hearing health, and school readiness. Results: Caregivers were positive about the interactive speech and language strategies in the program, except for some strategies which some parents found alien or difficult: such as talking slowly, following along with the child's topic, using parallel talk, or baby talk. Children's hearing was considered by caregivers to be important for understanding people, enjoying music, and detecting environmental sounds including signs of danger. Caregivers provided perspectives on the utility of sign language and its benefits for communicating with infants and young children with hearing loss, and the difficulty of getting young community children to wear a conventional hearing aid. Caregivers were strongly of the opinion that the program had helped prepare children for school through familiarising their child with early literacy activities and resources, as well as school routines. But caregivers differed as to whether they thought the program should have been located at the school itself. Conclusions: The caregivers generally reported positive views about the LiTTLe Program, and also drew attention to areas for improvement. The perspectives gathered may serve to guide other cross-sector collaborations across health and education to respond to OM among children at risk for OM-related disability in speech and language development.

LanguageEnglish
Article number99
Pages1-13
Number of pages13
JournalBMC Pediatrics
Volume18
Issue number1
DOIs
Publication statusPublished - 6 Mar 2018

Fingerprint

Otitis Media
Caregivers
Hearing
Language
Health Education
Parents
Northern Territory
Sign Language
Language Development
Hearing Aids
School Health Services
Health
Music
Hearing Loss
Learning
Interviews

Bibliographical note

Copyright the Author(s) 2018. Version archived for private and non-commercial use with the permission of the author/s and according to publisher conditions. For further rights please contact the publisher.

Keywords

  • hearing loss
  • Indigenous
  • interventions
  • otitis media
  • qualitative

Cite this

Jones, Caroline ; Sharma, Mridula ; Harkus, Samantha ; McMahon, Catherine ; Taumoepeau, Mele ; Demuth, Katherine ; Mattock, Karen ; Rosas, Lee ; Wing, Raelene ; Pawar, Sulabha ; Hampshire, Anne. / A program to respond to otitis media in remote Australian Aboriginal communities : a qualitative investigation of parent perspectives. In: BMC Pediatrics. 2018 ; Vol. 18, No. 1. pp. 1-13.
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abstract = "Background: Indigenous infants and children in Australia, especially in remote communities, experience early and chronic otitis media (OM) which is difficult to treat and has lifelong impacts in health and education. The LiTTLe Program (Learning to Talk, Talking to Learn) aimed to increase infants' access to spoken language input, teach parents to manage health and hearing problems, and support children's school readiness. This paper aimed to explore caregivers' views about this inclusive, parent-implemented early childhood program for 0-3 years in an Aboriginal community health context. Methods: Data from in-depth, semi-structured interviews with 9 caregivers of 12 children who had participated in the program from one remote Aboriginal community in the Northern Territory are presented. Data were analysed thematically. Caregivers provided overall views on the program. In addition, three key areas of focus in the program are also presented here: speech and language, hearing health, and school readiness. Results: Caregivers were positive about the interactive speech and language strategies in the program, except for some strategies which some parents found alien or difficult: such as talking slowly, following along with the child's topic, using parallel talk, or baby talk. Children's hearing was considered by caregivers to be important for understanding people, enjoying music, and detecting environmental sounds including signs of danger. Caregivers provided perspectives on the utility of sign language and its benefits for communicating with infants and young children with hearing loss, and the difficulty of getting young community children to wear a conventional hearing aid. Caregivers were strongly of the opinion that the program had helped prepare children for school through familiarising their child with early literacy activities and resources, as well as school routines. But caregivers differed as to whether they thought the program should have been located at the school itself. Conclusions: The caregivers generally reported positive views about the LiTTLe Program, and also drew attention to areas for improvement. The perspectives gathered may serve to guide other cross-sector collaborations across health and education to respond to OM among children at risk for OM-related disability in speech and language development.",
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A program to respond to otitis media in remote Australian Aboriginal communities : a qualitative investigation of parent perspectives. / Jones, Caroline; Sharma, Mridula; Harkus, Samantha; McMahon, Catherine; Taumoepeau, Mele; Demuth, Katherine; Mattock, Karen; Rosas, Lee; Wing, Raelene; Pawar, Sulabha; Hampshire, Anne.

In: BMC Pediatrics, Vol. 18, No. 1, 99, 06.03.2018, p. 1-13.

Research output: Contribution to journalArticleResearchpeer-review

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AU - Sharma, Mridula

AU - Harkus, Samantha

AU - McMahon, Catherine

AU - Taumoepeau, Mele

AU - Demuth, Katherine

AU - Mattock, Karen

AU - Rosas, Lee

AU - Wing, Raelene

AU - Pawar, Sulabha

AU - Hampshire, Anne

N1 - Copyright the Author(s) 2018. Version archived for private and non-commercial use with the permission of the author/s and according to publisher conditions. For further rights please contact the publisher.

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