A randomized trial of a breast/ovarian cancer genetic testing decision aid used as a communication aid during genetic counseling

Claire E. Wakefield*, Bettina Meiser, Judi Homewood, Alan Taylor, Margaret Gleeson, Rachel Williams, Kathy Tucker, K. Barlow-Stewart, G. Fenton, A. Goodwin, J. Kirk, P. Zodgekar, L. Andrews, J. Koehler, A. Overkov, M. Peate, J. Tyler, B. Warner, T. Dudding, C. GroombridgeS. O'Donnell, A. Spigelman, C. McMahon, L. Hossack, M. Kentwell, M. Young, C. Aragona, R. D'Souza, C. Gaff, L. Hodgkin, R. Ward, P. Butow, E. Lobb

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

36 Citations (Scopus)

Abstract

Objectives: To evaluate the impact of a decision aid for women considering genetic testing for breast/ovarian cancer risk given during genetic counseling. Methods: One hundred and forty-eight women were randomized to receive the decision aid or a control pamphlet at the beginning of their first consultation with a genetic counselor. When the patient received the decision aid, it was used to complement consultation discussions about genetic testing. One hundred and ten (74.3%) women completed the first questionnaire designed to elicit information about women's levels of decisional conflict and knowledge about genetic testing. Of these, 105 (70.9%) completed a second questionnaire to assess longer-term outcomes, 6 months postconsultation. Results: Results showed that women who received the decision aid felt more informed about genetic testing (χ2(1) = 8.69; P = 0.003), had clearer values (χ2(1) = 6.90; P = 0.009) and had higher knowledge levels (χ2(2) = 6.49; P = 0.039) than women who received the control pamphlet. Conclusions: The developed decision aid improved patient outcomes better than a control pamphlet when implemented during genetic counseling and given to the patient to take home.

Original languageEnglish
Pages (from-to)844-854
Number of pages11
JournalPsycho-Oncology
Volume17
Issue number8
DOIs
Publication statusPublished - Aug 2008

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