TY - JOUR
T1 - Between essence and diversity
T2 - challenges for phenomenological Autism research
AU - Hughes, Emily
AU - Ekdahl, David
AU - Boldsen, Sofie
PY - 2025/2/1
Y1 - 2025/2/1
N2 - Written from the perspective of phenomenological philosophy, this article evaluates recent claims that phenomenology has an important contribution to make in redressing the lack of insight into Autistic lived experience. As a philosophical discipline concerned with describing, understanding, and interpreting subjective and intersubjective experience, phenomenology is theoretically well-placed to foreground first-person Autistic perspectives in Autism research. In this article, however, we raise concerns that extant phenomenological Autism research often struggles to break free from conceptual commitments that risk objectifying Autistic being-in-the-world as deficient and dysfunctional. If it is to take seriously the challenges posed by the neurodiversity paradigm, we suggest that phenomenological Autism research must adopt a critical approach that engages the diversity of Autistic lived experience. Informed by this theoretical perspective, we give a number of recommendations for future phenomenologically informed qualitative research of Autistic lived experience that is empathic and inclusive of Autistic ways of being, whilst actively working against the alienation of Autistic people.
AB - Written from the perspective of phenomenological philosophy, this article evaluates recent claims that phenomenology has an important contribution to make in redressing the lack of insight into Autistic lived experience. As a philosophical discipline concerned with describing, understanding, and interpreting subjective and intersubjective experience, phenomenology is theoretically well-placed to foreground first-person Autistic perspectives in Autism research. In this article, however, we raise concerns that extant phenomenological Autism research often struggles to break free from conceptual commitments that risk objectifying Autistic being-in-the-world as deficient and dysfunctional. If it is to take seriously the challenges posed by the neurodiversity paradigm, we suggest that phenomenological Autism research must adopt a critical approach that engages the diversity of Autistic lived experience. Informed by this theoretical perspective, we give a number of recommendations for future phenomenologically informed qualitative research of Autistic lived experience that is empathic and inclusive of Autistic ways of being, whilst actively working against the alienation of Autistic people.
KW - autism research
KW - neurodiversity
KW - phenomenology
KW - psychopathology
KW - qualitative research
KW - subjectivity
UR - http://www.scopus.com/inward/record.url?scp=85217159488&partnerID=8YFLogxK
U2 - 10.1177/09593543251315074
DO - 10.1177/09593543251315074
M3 - Article
AN - SCOPUS:85217159488
SN - 0959-3543
JO - Theory and Psychology
JF - Theory and Psychology
ER -