Consensus statement on physical rehabilitation in children and adolescents with osteogenesis imperfecta

Brigitte Mueller; Raoul Engelbert; Frances Baratta-Ziska; Bart Bartels; Nicole Blanc; Evelise Brizola; Paolo Fraschini; Claire Hill; Caroline Marr; Lisa Mills; Kathleen Montpetit; Verity Pacey; Miguel Rodriguez Molina; Marleen Schuuring; Chantal Verhille; Olga De Vries; Eric Hiu Kwong Yeung; Oliver Semler

doi:10.1186/s13023-018-0905-4

Consensus statement on physical rehabilitation in children and adolescents with osteogenesis imperfecta

Brigitte Mueller, Raoul Engelbert, Frances Baratta-Ziska, Bart Bartels, Nicole Blanc, Evelise Brizola, Paolo Fraschini, Claire Hill, Caroline Marr, Lisa Mills, Kathleen Montpetit, Verity Pacey, Miguel Rodriguez Molina, Marleen Schuuring, Chantal Verhille, Olga De Vries, Eric Hiu Kwong Yeung, Oliver Semler^*

^*Corresponding author for this work

Research output: Contribution to journal › Article › peer-review

60 Citations (Scopus)

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Abstract

On the occasion of the 13th International Conference on Osteogenesis imperfecta in August 2017 an expert panel was convened to develop an international consensus paper regarding physical rehabilitation in children and adolescents with Osteogenesis imperfecta. The experts were chosen based on their clinical experience with children with osteogenesis imperfecta and were identified by sending out questionnaires to specialized centers and patient organizations in 26 different countries. The final expert-group included 16 representatives (12 physiotherapists, two occupational therapists and two medical doctors) from 14 countries. Within the framework of a collation of personal experiences and the results of a literature search, the participating physiotherapists, occupational therapists and medical doctors formulated 17 expert-statements on physical rehabilitation in patients aged 0- 18 years with osteogenesis imperfecta.

Original language	English
Article number	158
Pages (from-to)	1-14
Number of pages	14
Journal	Orphanet Journal of Rare Diseases
Volume	13
DOIs	https://doi.org/10.1186/s13023-018-0905-4
Publication status	Published - 10 Sept 2018

Bibliographical note

Copyright the Author(s) 2018. Version archived for private and non-commercial use with the permission of the author/s and according to publisher conditions. For further rights please contact the publisher.

Keywords

Mobility
Occupational therapy
Osteogenesis imperfecta
Physiotherapy
Rehabilitation

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10.1186/s13023-018-0905-4

Publisher version (open access)Final published version, 1.33 MBLicence: CC BY

Cite this

Mueller, B., Engelbert, R., Baratta-Ziska, F., Bartels, B., Blanc, N., Brizola, E., Fraschini, P., Hill, C., Marr, C., Mills, L., Montpetit, K., Pacey, V., Molina, M. R., Schuuring, M., Verhille, C., De Vries, O., Yeung, E. H. K., & Semler, O. (2018). Consensus statement on physical rehabilitation in children and adolescents with osteogenesis imperfecta. Orphanet Journal of Rare Diseases, 13, 1-14. [158]. https://doi.org/10.1186/s13023-018-0905-4

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title = "Consensus statement on physical rehabilitation in children and adolescents with osteogenesis imperfecta",

abstract = "On the occasion of the 13th International Conference on Osteogenesis imperfecta in August 2017 an expert panel was convened to develop an international consensus paper regarding physical rehabilitation in children and adolescents with Osteogenesis imperfecta. The experts were chosen based on their clinical experience with children with osteogenesis imperfecta and were identified by sending out questionnaires to specialized centers and patient organizations in 26 different countries. The final expert-group included 16 representatives (12 physiotherapists, two occupational therapists and two medical doctors) from 14 countries. Within the framework of a collation of personal experiences and the results of a literature search, the participating physiotherapists, occupational therapists and medical doctors formulated 17 expert-statements on physical rehabilitation in patients aged 0- 18 years with osteogenesis imperfecta.",

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author = "Brigitte Mueller and Raoul Engelbert and Frances Baratta-Ziska and Bart Bartels and Nicole Blanc and Evelise Brizola and Paolo Fraschini and Claire Hill and Caroline Marr and Lisa Mills and Kathleen Montpetit and Verity Pacey and Molina, {Miguel Rodriguez} and Marleen Schuuring and Chantal Verhille and {De Vries}, Olga and Yeung, {Eric Hiu Kwong} and Oliver Semler",

note = "Copyright the Author(s) 2018. Version archived for private and non-commercial use with the permission of the author/s and according to publisher conditions. For further rights please contact the publisher.",

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Mueller, B, Engelbert, R, Baratta-Ziska, F, Bartels, B, Blanc, N, Brizola, E, Fraschini, P, Hill, C, Marr, C, Mills, L, Montpetit, K, Pacey, V, Molina, MR, Schuuring, M, Verhille, C, De Vries, O, Yeung, EHK & Semler, O 2018, 'Consensus statement on physical rehabilitation in children and adolescents with osteogenesis imperfecta', Orphanet Journal of Rare Diseases, vol. 13, 158, pp. 1-14. https://doi.org/10.1186/s13023-018-0905-4

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AU - Mueller, Brigitte

AU - Engelbert, Raoul

AU - Baratta-Ziska, Frances

AU - Bartels, Bart

AU - Blanc, Nicole

AU - Brizola, Evelise

AU - Fraschini, Paolo

AU - Hill, Claire

AU - Marr, Caroline

AU - Mills, Lisa

AU - Montpetit, Kathleen

AU - Pacey, Verity

AU - Molina, Miguel Rodriguez

AU - Schuuring, Marleen

AU - Verhille, Chantal

AU - De Vries, Olga

AU - Yeung, Eric Hiu Kwong

AU - Semler, Oliver

N1 - Copyright the Author(s) 2018. Version archived for private and non-commercial use with the permission of the author/s and according to publisher conditions. For further rights please contact the publisher.

PY - 2018/9/10

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N2 - On the occasion of the 13th International Conference on Osteogenesis imperfecta in August 2017 an expert panel was convened to develop an international consensus paper regarding physical rehabilitation in children and adolescents with Osteogenesis imperfecta. The experts were chosen based on their clinical experience with children with osteogenesis imperfecta and were identified by sending out questionnaires to specialized centers and patient organizations in 26 different countries. The final expert-group included 16 representatives (12 physiotherapists, two occupational therapists and two medical doctors) from 14 countries. Within the framework of a collation of personal experiences and the results of a literature search, the participating physiotherapists, occupational therapists and medical doctors formulated 17 expert-statements on physical rehabilitation in patients aged 0- 18 years with osteogenesis imperfecta.

AB - On the occasion of the 13th International Conference on Osteogenesis imperfecta in August 2017 an expert panel was convened to develop an international consensus paper regarding physical rehabilitation in children and adolescents with Osteogenesis imperfecta. The experts were chosen based on their clinical experience with children with osteogenesis imperfecta and were identified by sending out questionnaires to specialized centers and patient organizations in 26 different countries. The final expert-group included 16 representatives (12 physiotherapists, two occupational therapists and two medical doctors) from 14 countries. Within the framework of a collation of personal experiences and the results of a literature search, the participating physiotherapists, occupational therapists and medical doctors formulated 17 expert-statements on physical rehabilitation in patients aged 0- 18 years with osteogenesis imperfecta.

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KW - Occupational therapy

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JO - Orphanet Journal of Rare Diseases

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ER -

Consensus statement on physical rehabilitation in children and adolescents with osteogenesis imperfecta

Abstract

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Keywords

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