TY - JOUR
T1 - Crafting and retelling everyday lives--disabled people's contribution to bioethical concerns
AU - Matthews, Nicole
AU - Ellem, Kathleen
AU - Chenoweth, Lesley
PY - 2013/12/1
Y1 - 2013/12/1
N2 - This commentary draws out themes from the narrative symposium on "living with the label "disability"" from the perspective of auto/biography and critical disability studies in the humanities. It notes the disconnect between the experiences discussed in the stories and the preoccupations of bioethicists. Referencing Rosemarie Garland-Thompson's recent work, it suggests that life stories by people usually described as "disabled" offer narrative, epistemic and ethical resources for bioethics. The commentary suggests that the symposium offers valuable conceptual tools and critiques of taken-for-granted terms like "dependency". It notes that these narrators do not un-problematically embrace the term "disability", but emphasize the need to redefine, strategically deploy or reject this term. Some accounts are explicitly critical of medical practitioners while others redefine health and wellbeing, emphasizing the need for reciprocity and respect for the knowledge of people with disability, including knowledge from their experience of "the variant body" (Leach Scully, 2008).
AB - This commentary draws out themes from the narrative symposium on "living with the label "disability"" from the perspective of auto/biography and critical disability studies in the humanities. It notes the disconnect between the experiences discussed in the stories and the preoccupations of bioethicists. Referencing Rosemarie Garland-Thompson's recent work, it suggests that life stories by people usually described as "disabled" offer narrative, epistemic and ethical resources for bioethics. The commentary suggests that the symposium offers valuable conceptual tools and critiques of taken-for-granted terms like "dependency". It notes that these narrators do not un-problematically embrace the term "disability", but emphasize the need to redefine, strategically deploy or reject this term. Some accounts are explicitly critical of medical practitioners while others redefine health and wellbeing, emphasizing the need for reciprocity and respect for the knowledge of people with disability, including knowledge from their experience of "the variant body" (Leach Scully, 2008).
UR - http://www.scopus.com/inward/record.url?scp=84944174993&partnerID=8YFLogxK
U2 - 10.1353/nib.2013.0074
DO - 10.1353/nib.2013.0074
M3 - Article
C2 - 24407131
AN - SCOPUS:84944174993
SN - 2157-1740
VL - 3
SP - 235
EP - 240
JO - Narrative inquiry in bioethics
JF - Narrative inquiry in bioethics
IS - 3
ER -