Data linkage capabilities in Australia

Practical issues identified by a Population Health Research Network 'Proof of Concept project'

Rebecca J. Mitchell*, Cate M. Cameron, Rod J. McClure, Ann M. Williamson

*Corresponding author for this work

Research output: Contribution to journalReview article

12 Citations (Scopus)

Abstract

Objective: To describe the practical issues that need to be overcome to conduct national data linkage projects in Australia and propose recommendations to improve efficiency. Methods: Review of the processes, documentation and applications required to conduct national data linkage in Australia. Results: The establishment of state and national data linkage centres in Australia has placed Australia at the forefront of research linking health-related administrative data collections. However, improvements are needed to reduce the clerical burden on researchers, simplify the process of obtaining ethics approval, improve data accessibility, and thus improve the efficiency of data linkage research. Conclusions: While a sound state and national data linkage infrastructure is in place, the current complexity, duplication and lack of cohesion undermines any attempts to conduct research involving national record linkage in a timely manner. Implications: Data linkage applications and Human Research Ethics Committee approval processes need to be streamlined and duplication removed, in order to reduce the administrative and financial burden on researchers if national data linkage research is to be viable.

Original languageEnglish
Pages (from-to)319-325
Number of pages7
JournalAustralian and New Zealand Journal of Public Health
Volume39
Issue number4
DOIs
Publication statusPublished - 1 Aug 2015

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