Development and evaluation of an information booklet for grandparents of children with cancer

Claire Wakefield, Sixuan Lin, Donna Drew, Jordana McLoone, Emma Doolan, Alison Young, Joanna Fardell, Richard Cohn

Research output: Contribution to journalArticlepeer-review

5 Citations (Scopus)

Abstract

The needs of grandparents of children with cancer are often overlooked. This study evaluated a new educational resource (booklet) targeted toward grandparents of children with cancer. A multidisciplinary committee developed a printed booklet targeting grandparents' information needs identified in a previous study. Seventy-nine grandparents of children with cancer (63% grandmothers, M[age] = 66.04, SD = 7.0 years) read and evaluated the booklet. Quantitative responses were analyzed with SPSS, and qualitative responses were thematically coded using QSR NVivo 10. Grandparents' responses to the resource were positive, with 92% finding the booklet "informative" (n = 73), "useful" (84%, n = 66), and "very relevant" (50%, n = 39). Qualitative responses reflected an appreciation for the booklet's readability, informative content, and quotes from grandparent experiences. The developed booklet was highly acceptable to grandparents of children with cancer and addressed their need for reassurance and guidance on obtaining further support. This study demonstrates the feasibility of developing and evaluating a targeted resource to meet grandparent’s identified information needs.
Original languageEnglish
Pages (from-to)361-369
Number of pages9
JournalJournal of Pediatric Oncology Nursing
Volume33
Issue number5
DOIs
Publication statusPublished - 1 Sep 2016
Externally publishedYes

Keywords

  • grandparents
  • information
  • support
  • evaluation
  • children
  • cancer

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