Enabling access to British birth cohort studies: a secure web interface for the NSHD (SWIFT)

Paul A. Watters; Diana Kuh; Susan Latham; Imran Shah; Kevin Garwood

doi:10.1109/HEALTH.2009.5406207

Enabling access to British birth cohort studies: a secure web interface for the NSHD (SWIFT)

Paul A. Watters, Diana Kuh, Susan Latham, Imran Shah, Kevin Garwood

Research output: Chapter in Book/Report/Conference proceeding › Conference proceeding contribution › peer-review

3 Citations (Scopus)

Abstract

This paper provides an overview of the new Secure Web Interface for the Medical Research Council (MRC) National Survey of Health and Development (NSHD), which is a web-based data and metadata access system for the longest-running longitudinal study of health in the world [1]. Accessing NSHD metadata and data has often been a challenge for external (non-MRC) users, because the underlying data and metadata formats have changed dramatically in 63 years of operation, and because the processes involved in metadata search and data access were manual and usually required "on-site" access [2]. The design goals of the SWIFT include maintaining confidentiality and privacy of study members, enabling metadata search access to internal (MRC) and external users, facilitating data downloading and extraction from a range of underlying formats, and implementing procedures to ensure compliance with the governance policies of the MRC and the NSHD's governance panel. This paper details some of the challenges and successes of the MRC pathfinder "Data Access Project" to enable access using SWIFT while protecting the study members and their data.

Original language	English
Title of host publication	2009 11th IEEE International Conference on e-Health Networking, Applications and Services
Subtitle of host publication	Healthcom 2009
Publisher	Institute of Electrical and Electronics Engineers (IEEE)
Pages	94-100
Number of pages	7
ISBN (Print)	9781424450145
DOIs	https://doi.org/10.1109/HEALTH.2009.5406207
Publication status	Published - 2009
Externally published	Yes
Event	IEEE International Conference on e-Health Networking, Applications and Services (11th : 2009) - Sydney, Australia Duration: 16 Dec 2009 → 18 Dec 2009

Conference

Conference	IEEE International Conference on e-Health Networking, Applications and Services (11th : 2009)
Abbreviated title	Healthcom 2009
Country/Territory	Australia
City	Sydney
Period	16/12/09 → 18/12/09

Keywords

Governance
Public health
Secondary data access
Security policy

Access to Document

10.1109/HEALTH.2009.5406207

Cite this

Watters, P. A., Kuh, D., Latham, S., Shah, I., & Garwood, K. (2009). Enabling access to British birth cohort studies: a secure web interface for the NSHD (SWIFT). In 2009 11th IEEE International Conference on e-Health Networking, Applications and Services: Healthcom 2009 (pp. 94-100). Article 5406207 Institute of Electrical and Electronics Engineers (IEEE). https://doi.org/10.1109/HEALTH.2009.5406207

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title = "Enabling access to British birth cohort studies: a secure web interface for the NSHD (SWIFT)",

abstract = "This paper provides an overview of the new Secure Web Interface for the Medical Research Council (MRC) National Survey of Health and Development (NSHD), which is a web-based data and metadata access system for the longest-running longitudinal study of health in the world [1]. Accessing NSHD metadata and data has often been a challenge for external (non-MRC) users, because the underlying data and metadata formats have changed dramatically in 63 years of operation, and because the processes involved in metadata search and data access were manual and usually required {"}on-site{"} access [2]. The design goals of the SWIFT include maintaining confidentiality and privacy of study members, enabling metadata search access to internal (MRC) and external users, facilitating data downloading and extraction from a range of underlying formats, and implementing procedures to ensure compliance with the governance policies of the MRC and the NSHD's governance panel. This paper details some of the challenges and successes of the MRC pathfinder {"}Data Access Project{"} to enable access using SWIFT while protecting the study members and their data.",

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Watters, PA, Kuh, D, Latham, S, Shah, I & Garwood, K 2009, Enabling access to British birth cohort studies: a secure web interface for the NSHD (SWIFT). in 2009 11th IEEE International Conference on e-Health Networking, Applications and Services: Healthcom 2009., 5406207, Institute of Electrical and Electronics Engineers (IEEE), pp. 94-100, IEEE International Conference on e-Health Networking, Applications and Services (11th : 2009), Sydney, Australia, 16/12/09. https://doi.org/10.1109/HEALTH.2009.5406207

Enabling access to British birth cohort studies: a secure web interface for the NSHD (SWIFT). / Watters, Paul A.; Kuh, Diana; Latham, Susan et al.
2009 11th IEEE International Conference on e-Health Networking, Applications and Services: Healthcom 2009. Institute of Electrical and Electronics Engineers (IEEE), 2009. p. 94-100 5406207.

Research output: Chapter in Book/Report/Conference proceeding › Conference proceeding contribution › peer-review

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Enabling access to British birth cohort studies: a secure web interface for the NSHD (SWIFT)

Abstract

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Keywords

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