Exploring life with autism: Quality of Life, daily functioning and compensatory strategies from childhood to emerging adulthood: A qualitative study protocol

Elisabeth Øverland; Åshild Lappegard Hauge; Stian Orm; Elizabeth Pellicano; Merete Glenne Øie; Erik Winther Skogli; Per Normann Andersen

doi:10.3389/fpsyt.2022.1058601

Exploring life with autism: Quality of Life, daily functioning and compensatory strategies from childhood to emerging adulthood: A qualitative study protocol

Elisabeth Øverland^*, Åshild Lappegard Hauge, Stian Orm, Elizabeth Pellicano, Merete Glenne Øie, Erik Winther Skogli, Per Normann Andersen

^*Corresponding author for this work

Macquarie School of Education

Research output: Contribution to journal › Article › peer-review

4 Citations (Scopus)

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Abstract

Introduction: This study aims to investigate self-perceived quality of life, daily functioning, and the use of compensatory strategies in emerging adults with autism¹. Methods and analysis: Participants will be recruited from the Lillehammer Neurodevelopmental 10-year follow-up study (LINEUP), with the aim of 15 individual in-depth interviews. Subsequently, two focus groups with clinicians will be invited to reflect on the themes found in the individual interviews. All interviews will be recorded and analyzed using reflexive thematic analysis. Ethics and dissemination: The study is approved by the Regional Committee for Medical Research Ethics in South-East Norway. The findings will be disseminated to academic and clinical audiences through journal articles and conference presentations. To reach the broader autistic and autism communities, the findings will be shared with the Autism Society at national and local meetings, in their membership magazine, and on their social media channel.

Original language	English
Article number	1058601
Pages (from-to)	1-8
Number of pages	8
Journal	Frontiers in Psychiatry
Volume	13
DOIs	https://doi.org/10.3389/fpsyt.2022.1058601
Publication status	Published - 25 Nov 2022

Bibliographical note

Copyright the Author(s) 2022. Version archived for private and non-commercial use with the permission of the author/s and according to publisher conditions. For further rights please contact the publisher.

Keywords

autism
Quality of Life
emerging adulthood
compensatory strategies
autistic burnout

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Publisher version (open access)Final published version, 164 KBLicence: CC BY

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abstract = "Introduction: This study aims to investigate self-perceived quality of life, daily functioning, and the use of compensatory strategies in emerging adults with autism1. Methods and analysis: Participants will be recruited from the Lillehammer Neurodevelopmental 10-year follow-up study (LINEUP), with the aim of 15 individual in-depth interviews. Subsequently, two focus groups with clinicians will be invited to reflect on the themes found in the individual interviews. All interviews will be recorded and analyzed using reflexive thematic analysis. Ethics and dissemination: The study is approved by the Regional Committee for Medical Research Ethics in South-East Norway. The findings will be disseminated to academic and clinical audiences through journal articles and conference presentations. To reach the broader autistic and autism communities, the findings will be shared with the Autism Society at national and local meetings, in their membership magazine, and on their social media channel.",

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AU - Pellicano, Elizabeth

AU - Øie, Merete Glenne

AU - Skogli, Erik Winther

AU - Andersen, Per Normann

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Exploring life with autism: Quality of Life, daily functioning and compensatory strategies from childhood to emerging adulthood: A qualitative study protocol

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