Factors influencing caregiver decision making to change the communication method of their child with hearing loss

Nerina Scarinci; Monica Gehrke; Teresa Y. C. Ching; Vivienne Marnane; Laura Button

doi:10.1080/14643154.2018.1511239

Factors influencing caregiver decision making to change the communication method of their child with hearing loss

Nerina Scarinci^*, Monica Gehrke, Teresa Y. C. Ching, Vivienne Marnane, Laura Button

^*Corresponding author for this work

Research output: Contribution to journal › Article › peer-review

18 Citations (Scopus)

Abstract

The communication journey of a child with hearing loss is often a complex, interwoven process in which the child's use of language or method of communication may change numerous times. As there has been limited research exploring the caregiver decision-making process behind making such changes, this qualitative descriptive study aimed to explore the factors which influence the caregiver decision making-process to change the communication method of their child with hearing loss. Individual semi-structured in-depth interviews were conducted with seven caregivers of children with hearing loss in Australia. Thematic analysis revealed five key themes which influenced caregiver decisions regarding changes to their child's method of communication, including: (1) family characteristics; (2) family access to information; (3) family strengths; (4) family beliefs; and (5) family-centered practice. The overall finding that the family unit is at the core of decision-making has important clinical implications regarding early intervention professionals’ provision of family-centered services when working with the families of children with hearing loss.

Original language	English
Pages (from-to)	123-153
Number of pages	31
Journal	Deafness and Education International
Volume	20
Issue number	3-4
DOIs	https://doi.org/10.1080/14643154.2018.1511239
Publication status	Published - 2 Oct 2018
Externally published	Yes

Bibliographical note

Funding Information:
The authors acknowledge the financial support of the HEARing Cooperative Research Centre, established under the Cooperative Research Centers (CRC) Programme. The CRC Programme supports industry led end-user driven research collaborations to address the major challenges facing Australia.

Publisher Copyright:
© 2018, © 2018 Informa UK Limited, trading as Taylor & Francis Group.

Copyright:
Copyright 2018 Elsevier B.V., All rights reserved.

Keywords

children
hearing loss
communication method
language
choice
decision-making
family-centered care
qualitative

Access to Document

10.1080/14643154.2018.1511239

Cite this

@article{6fa5e6deaa624c4584bd4aaef68c33dd,

title = "Factors influencing caregiver decision making to change the communication method of their child with hearing loss",

abstract = "The communication journey of a child with hearing loss is often a complex, interwoven process in which the child's use of language or method of communication may change numerous times. As there has been limited research exploring the caregiver decision-making process behind making such changes, this qualitative descriptive study aimed to explore the factors which influence the caregiver decision making-process to change the communication method of their child with hearing loss. Individual semi-structured in-depth interviews were conducted with seven caregivers of children with hearing loss in Australia. Thematic analysis revealed five key themes which influenced caregiver decisions regarding changes to their child's method of communication, including: (1) family characteristics; (2) family access to information; (3) family strengths; (4) family beliefs; and (5) family-centered practice. The overall finding that the family unit is at the core of decision-making has important clinical implications regarding early intervention professionals{\textquoteright} provision of family-centered services when working with the families of children with hearing loss.",

keywords = "children, hearing loss, communication method, language, choice, decision-making, family-centered care, qualitative",

author = "Nerina Scarinci and Monica Gehrke and Ching, \{Teresa Y. C.\} and Vivienne Marnane and Laura Button",

note = "Funding Information: The authors acknowledge the financial support of the HEARing Cooperative Research Centre, established under the Cooperative Research Centers (CRC) Programme. The CRC Programme supports industry led end-user driven research collaborations to address the major challenges facing Australia. Publisher Copyright: {\textcopyright} 2018, {\textcopyright} 2018 Informa UK Limited, trading as Taylor \& Francis Group. Copyright: Copyright 2018 Elsevier B.V., All rights reserved.",

year = "2018",

month = oct,

day = "2",

doi = "10.1080/14643154.2018.1511239",

language = "English",

volume = "20",

pages = "123--153",

journal = "Deafness and Education International",

issn = "1464-3154",

publisher = "Maney Publishing",

number = "3-4",

}

TY - JOUR

T1 - Factors influencing caregiver decision making to change the communication method of their child with hearing loss

AU - Scarinci, Nerina

AU - Gehrke, Monica

AU - Ching, Teresa Y. C.

AU - Marnane, Vivienne

AU - Button, Laura

N1 - Funding Information: The authors acknowledge the financial support of the HEARing Cooperative Research Centre, established under the Cooperative Research Centers (CRC) Programme. The CRC Programme supports industry led end-user driven research collaborations to address the major challenges facing Australia. Publisher Copyright: © 2018, © 2018 Informa UK Limited, trading as Taylor & Francis Group. Copyright: Copyright 2018 Elsevier B.V., All rights reserved.

PY - 2018/10/2

Y1 - 2018/10/2

N2 - The communication journey of a child with hearing loss is often a complex, interwoven process in which the child's use of language or method of communication may change numerous times. As there has been limited research exploring the caregiver decision-making process behind making such changes, this qualitative descriptive study aimed to explore the factors which influence the caregiver decision making-process to change the communication method of their child with hearing loss. Individual semi-structured in-depth interviews were conducted with seven caregivers of children with hearing loss in Australia. Thematic analysis revealed five key themes which influenced caregiver decisions regarding changes to their child's method of communication, including: (1) family characteristics; (2) family access to information; (3) family strengths; (4) family beliefs; and (5) family-centered practice. The overall finding that the family unit is at the core of decision-making has important clinical implications regarding early intervention professionals’ provision of family-centered services when working with the families of children with hearing loss.

AB - The communication journey of a child with hearing loss is often a complex, interwoven process in which the child's use of language or method of communication may change numerous times. As there has been limited research exploring the caregiver decision-making process behind making such changes, this qualitative descriptive study aimed to explore the factors which influence the caregiver decision making-process to change the communication method of their child with hearing loss. Individual semi-structured in-depth interviews were conducted with seven caregivers of children with hearing loss in Australia. Thematic analysis revealed five key themes which influenced caregiver decisions regarding changes to their child's method of communication, including: (1) family characteristics; (2) family access to information; (3) family strengths; (4) family beliefs; and (5) family-centered practice. The overall finding that the family unit is at the core of decision-making has important clinical implications regarding early intervention professionals’ provision of family-centered services when working with the families of children with hearing loss.

KW - children

KW - hearing loss

KW - communication method

KW - language

KW - choice

KW - decision-making

KW - family-centered care

KW - qualitative

UR - https://www.scopus.com/pages/publications/85053058693

U2 - 10.1080/14643154.2018.1511239

DO - 10.1080/14643154.2018.1511239

M3 - Article

C2 - 30872974

AN - SCOPUS:85053058693

SN - 1464-3154

VL - 20

SP - 123

EP - 153

JO - Deafness and Education International

JF - Deafness and Education International

IS - 3-4

ER -

Factors influencing caregiver decision making to change the communication method of their child with hearing loss

Abstract

Bibliographical note

Keywords

Access to Document

Other files and links

Fingerprint

Cite this