Guidance to 2018 good practice: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma

MASK study group

doi:10.1186/s13601-019-0252-0

Guidance to 2018 good practice: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma

MASK study group

Research output: Contribution to journal › Review article › peer-review

107 Citations (Scopus)

12 Downloads (Pure)

Abstract

Aims: Mobile Airways Sentinel NetworK (MASK) belongs to the Fondation Partenariale MACVIA-LR of Montpellier, France and aims to provide an active and healthy life to rhinitis sufferers and to those with asthma multimorbidity across the life cycle, whatever their gender or socio-economic status, in order to reduce health and social inequities incurred by the disease and to improve the digital transformation of health and care. The ultimate goal is to change the management strategy in chronic diseases. Methods: MASK implements ICT technologies for individualized and predictive medicine to develop novel care pathways by a multi-disciplinary group centred around the patients. Stakeholders: Include patients, health care professionals (pharmacists and physicians), authorities, patient's associations, private and public sectors. Results: MASK is deployed in 23 countries and 17 languages. 26,000 users have registered. EU grants (2018): MASK is participating in EU projects (POLLAR: impact of air POLLution in Asthma and Rhinitis, EIT Health, DigitalHealthEurope, Euriphi and Vigour). Lessons learnt: (i) Adherence to treatment is the major problem of allergic disease, (ii) Self-management strategies should be considerably expanded (behavioural), (iii) Change management is essential in allergic diseases, (iv) Education strategies should be reconsidered using a patient-centred approach and (v) Lessons learnt for allergic diseases can be expanded to chronic diseases.

Original language	English
Article number	16
Pages (from-to)	1-19
Number of pages	19
Journal	Clinical and Translational Allergy
Volume	9
Issue number	1
DOIs	https://doi.org/10.1186/s13601-019-0252-0
Publication status	Published - 11 Mar 2019
Externally published	Yes

Bibliographical note

Copyright the Author(s) 2019. Version archived for private and non-commercial use with the permission of the author/s and according to publisher conditions. For further rights please contact the publisher.

Keywords

App
Asthma
Care pathways
DG Santé
MASK
mHealth
Rhinitis

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10.1186/s13601-019-0252-0Licence: CC BY

Publisher version (open access)Final published version, 2.07 MBLicence: CC BY

Cite this

@article{0a3eef0d52be47fe9193a34b71f8bcab,

title = "Guidance to 2018 good practice: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma",

abstract = "Aims: Mobile Airways Sentinel NetworK (MASK) belongs to the Fondation Partenariale MACVIA-LR of Montpellier, France and aims to provide an active and healthy life to rhinitis sufferers and to those with asthma multimorbidity across the life cycle, whatever their gender or socio-economic status, in order to reduce health and social inequities incurred by the disease and to improve the digital transformation of health and care. The ultimate goal is to change the management strategy in chronic diseases. Methods: MASK implements ICT technologies for individualized and predictive medicine to develop novel care pathways by a multi-disciplinary group centred around the patients. Stakeholders: Include patients, health care professionals (pharmacists and physicians), authorities, patient's associations, private and public sectors. Results: MASK is deployed in 23 countries and 17 languages. 26,000 users have registered. EU grants (2018): MASK is participating in EU projects (POLLAR: impact of air POLLution in Asthma and Rhinitis, EIT Health, DigitalHealthEurope, Euriphi and Vigour). Lessons learnt: (i) Adherence to treatment is the major problem of allergic disease, (ii) Self-management strategies should be considerably expanded (behavioural), (iii) Change management is essential in allergic diseases, (iv) Education strategies should be reconsidered using a patient-centred approach and (v) Lessons learnt for allergic diseases can be expanded to chronic diseases.",

keywords = "App, Asthma, Care pathways, DG Sant{\'e}, MASK, mHealth, Rhinitis",

author = "J. Bousquet and A. Bedbrook and W. Czarlewski and Onorato, \{G. L.\} and S. Arnavielhe and D. Laune and E. Mathieu-Dupas and J. Fonseca and E. Costa and O. Louren{\c c}o and M. Morais-Almeida and A. Todo-Bom and M. Illario and E. Menditto and Canonica, \{G. W.\} and L. Cecchi and R. Monti and L. Napoli and Ventura, \{M. T.\} and \{De Feo\}, G. and Fokkens, \{W. J.\} and Chavannes, \{N. H.\} and S. Reitsma and Cruz, \{A. A.\} and \{Da Silva\}, J. and Serpa, \{F. S.\} and D. Larenas-Linnemann and \{Fuentes Perez\}, \{J. M.\} and Huerta-Villalobos, \{Y. R.\} and D. Rivero-Yeverino and E. Rodriguez-Zagal and A. Valiulis and R. Dubakiene and R. Emuzyte and V. Kvedariene and I. Annesi-Maesano and H. Blain and P. Bonniaud and I. Bosse and Y. Dauvilliers and P. Devillier and Fontaine, \{J. F.\} and P{\'e}pin, \{J. L.\} and N. Pham-Thi and F. Portejoie and R. Picard and N. Roche and C. Rolland and P. Schmidt-Grendelmeier and P. Kuna and B. Samolinski and Anto, \{J. M.\} and V. Cardona and J. Mullol and H. Pinnock and D. Ryan and A. Sheikh and S. Walker and S. Williams and S. Becker and L. Klimek and O. Pfaar and Bergmann, \{K. C.\} and R. M{\"o}sges and T. Zuberbier and Roller-Wirnsberger, \{R. E.\} and Tomazic, \{P. V.\} and T. Haahtela and J. Salim{\"a}ki and S. Toppila-Salmi and E. Valovirta and T. Vasankari and B. Gemicioǧlu and A. Yorgancioglu and Papadopoulos, \{N. G.\} and Prokopakis, \{E. P.\} and Tsiligianni, \{I. G.\} and S. Bosnic-Anticevich and R. O'Hehir and Ivancevich, \{J. C.\} and H. Neffen and Zernotti, \{M. E.\} and I. Kull and E. Mel{\'e}n and M. Wickman and C. Bachert and Hellings, \{P. W.\} and G. Brusselle and S. Palkonen and C. Bindslev-Jensen and E. Eller and S. Waserman and Boulet, \{L. P.\} and J. Bouchard and Chu, \{D. K.\} and Sch{\"u}nemann, \{H. J.\} and M. Sova and \{De Vries\}, G. and \{Van Eerd\}, M. and I. Agache and Ansotegui, \{I. J.\} and M. Bewick and T. Casale and M. Dykewick and M. Ebisawa and R. Murray and R. Naclerio and Y. Okamoto and Wallace, \{D. V.\} and \{MASK study group\}",

note = "Copyright the Author(s) 2019. Version archived for private and non-commercial use with the permission of the author/s and according to publisher conditions. For further rights please contact the publisher.",

year = "2019",

month = mar,

day = "11",

doi = "10.1186/s13601-019-0252-0",

language = "English",

volume = "9",

pages = "1--19",

journal = "Clinical and Translational Allergy",

issn = "2045-7022",

publisher = "Springer, Springer Nature",

number = "1",

}

TY - JOUR

T1 - Guidance to 2018 good practice

T2 - ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma

AU - Bousquet, J.

AU - Bedbrook, A.

AU - Czarlewski, W.

AU - Onorato, G. L.

AU - Arnavielhe, S.

AU - Laune, D.

AU - Mathieu-Dupas, E.

AU - Fonseca, J.

AU - Costa, E.

AU - Lourenço, O.

AU - Morais-Almeida, M.

AU - Todo-Bom, A.

AU - Illario, M.

AU - Menditto, E.

AU - Canonica, G. W.

AU - Cecchi, L.

AU - Monti, R.

AU - Napoli, L.

AU - Ventura, M. T.

AU - De Feo, G.

AU - Fokkens, W. J.

AU - Chavannes, N. H.

AU - Reitsma, S.

AU - Cruz, A. A.

AU - Da Silva, J.

AU - Serpa, F. S.

AU - Larenas-Linnemann, D.

AU - Fuentes Perez, J. M.

AU - Huerta-Villalobos, Y. R.

AU - Rivero-Yeverino, D.

AU - Rodriguez-Zagal, E.

AU - Valiulis, A.

AU - Dubakiene, R.

AU - Emuzyte, R.

AU - Kvedariene, V.

AU - Annesi-Maesano, I.

AU - Blain, H.

AU - Bonniaud, P.

AU - Bosse, I.

AU - Dauvilliers, Y.

AU - Devillier, P.

AU - Fontaine, J. F.

AU - Pépin, J. L.

AU - Pham-Thi, N.

AU - Portejoie, F.

AU - Picard, R.

AU - Roche, N.

AU - Rolland, C.

AU - Schmidt-Grendelmeier, P.

AU - Kuna, P.

AU - Samolinski, B.

AU - Anto, J. M.

AU - Cardona, V.

AU - Mullol, J.

AU - Pinnock, H.

AU - Ryan, D.

AU - Sheikh, A.

AU - Walker, S.

AU - Williams, S.

AU - Becker, S.

AU - Klimek, L.

AU - Pfaar, O.

AU - Bergmann, K. C.

AU - Mösges, R.

AU - Zuberbier, T.

AU - Roller-Wirnsberger, R. E.

AU - Tomazic, P. V.

AU - Haahtela, T.

AU - Salimäki, J.

AU - Toppila-Salmi, S.

AU - Valovirta, E.

AU - Vasankari, T.

AU - Gemicioǧlu, B.

AU - Yorgancioglu, A.

AU - Papadopoulos, N. G.

AU - Prokopakis, E. P.

AU - Tsiligianni, I. G.

AU - Bosnic-Anticevich, S.

AU - O'Hehir, R.

AU - Ivancevich, J. C.

AU - Neffen, H.

AU - Zernotti, M. E.

AU - Kull, I.

AU - Melén, E.

AU - Wickman, M.

AU - Bachert, C.

AU - Hellings, P. W.

AU - Brusselle, G.

AU - Palkonen, S.

AU - Bindslev-Jensen, C.

AU - Eller, E.

AU - Waserman, S.

AU - Boulet, L. P.

AU - Bouchard, J.

AU - Chu, D. K.

AU - Schünemann, H. J.

AU - Sova, M.

AU - De Vries, G.

AU - Van Eerd, M.

AU - Agache, I.

AU - Ansotegui, I. J.

AU - Bewick, M.

AU - Casale, T.

AU - Dykewick, M.

AU - Ebisawa, M.

AU - Murray, R.

AU - Naclerio, R.

AU - Okamoto, Y.

AU - Wallace, D. V.

AU - MASK study group

N1 - Copyright the Author(s) 2019. Version archived for private and non-commercial use with the permission of the author/s and according to publisher conditions. For further rights please contact the publisher.

PY - 2019/3/11

Y1 - 2019/3/11

N2 - Aims: Mobile Airways Sentinel NetworK (MASK) belongs to the Fondation Partenariale MACVIA-LR of Montpellier, France and aims to provide an active and healthy life to rhinitis sufferers and to those with asthma multimorbidity across the life cycle, whatever their gender or socio-economic status, in order to reduce health and social inequities incurred by the disease and to improve the digital transformation of health and care. The ultimate goal is to change the management strategy in chronic diseases. Methods: MASK implements ICT technologies for individualized and predictive medicine to develop novel care pathways by a multi-disciplinary group centred around the patients. Stakeholders: Include patients, health care professionals (pharmacists and physicians), authorities, patient's associations, private and public sectors. Results: MASK is deployed in 23 countries and 17 languages. 26,000 users have registered. EU grants (2018): MASK is participating in EU projects (POLLAR: impact of air POLLution in Asthma and Rhinitis, EIT Health, DigitalHealthEurope, Euriphi and Vigour). Lessons learnt: (i) Adherence to treatment is the major problem of allergic disease, (ii) Self-management strategies should be considerably expanded (behavioural), (iii) Change management is essential in allergic diseases, (iv) Education strategies should be reconsidered using a patient-centred approach and (v) Lessons learnt for allergic diseases can be expanded to chronic diseases.

AB - Aims: Mobile Airways Sentinel NetworK (MASK) belongs to the Fondation Partenariale MACVIA-LR of Montpellier, France and aims to provide an active and healthy life to rhinitis sufferers and to those with asthma multimorbidity across the life cycle, whatever their gender or socio-economic status, in order to reduce health and social inequities incurred by the disease and to improve the digital transformation of health and care. The ultimate goal is to change the management strategy in chronic diseases. Methods: MASK implements ICT technologies for individualized and predictive medicine to develop novel care pathways by a multi-disciplinary group centred around the patients. Stakeholders: Include patients, health care professionals (pharmacists and physicians), authorities, patient's associations, private and public sectors. Results: MASK is deployed in 23 countries and 17 languages. 26,000 users have registered. EU grants (2018): MASK is participating in EU projects (POLLAR: impact of air POLLution in Asthma and Rhinitis, EIT Health, DigitalHealthEurope, Euriphi and Vigour). Lessons learnt: (i) Adherence to treatment is the major problem of allergic disease, (ii) Self-management strategies should be considerably expanded (behavioural), (iii) Change management is essential in allergic diseases, (iv) Education strategies should be reconsidered using a patient-centred approach and (v) Lessons learnt for allergic diseases can be expanded to chronic diseases.

KW - App

KW - Asthma

KW - Care pathways

KW - DG Santé

KW - MASK

KW - mHealth

KW - Rhinitis

UR - https://www.scopus.com/pages/publications/85062865821

U2 - 10.1186/s13601-019-0252-0

DO - 10.1186/s13601-019-0252-0

M3 - Review article

C2 - 30911372

SN - 2045-7022

VL - 9

SP - 1

EP - 19

JO - Clinical and Translational Allergy

JF - Clinical and Translational Allergy

IS - 1

M1 - 16

ER -

Guidance to 2018 good practice: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma

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Keywords

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