Health and wellbeing of people with intersex variations

information and resource paper

Tiffany Jones, William Leonard

Research output: Book/ReportCommissioned report

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This information and resource paper provides the context for a suite of materials targeted to a diverse range of people involved in the treatment, care and support of people with intersex variations. The Victorian Government commissioned this paper to support the development and implementation of evidence-based policies, programs and services, and to further understanding of the needs and interests of people with intersex variations in Victoria. This paper has been developed with input from members of an Intersex Expert Advisory Group and other stakeholders who provided advice on a wide range of issues, including research limitations, current clinical practice, and appropriate and respectful terminology.

The Victorian Department of Health and Human Services recognises the expertise and experiences of people with intersex variations and their families, and the leading efforts of medical, ethical and legal professions involved in the health care of people with intersex variations in Victoria. The department would like to thank all of those who contributed their time and expertise to the development of this and related resources and acknowledge the contribution of Australian and Victorian intersex human rights advocates to the development of improved understanding and practice locally and internationally. In particular, the department thanks those involved in the 2016 project overseen by Gay and Lesbian Health Victoria (GLHV), including project leads Associate Professor Tiffany Jones (La Trobe University and the University of New England) and William Leonard (Director GLHV), strategic advisors Anna Brown and Lee Carnie (Human Rights Law Centre) and research assistants Renee Zborowski and Joe Latham. The 2016 project also benefitted from the input of a range of stakeholders, including members of the Department of Health and Human Services 2016–2017 Intersex Expert Advisory Group (IEAG), clinicians, researchers and other health and education experts. Thanks also to participants of the further consultations undertaken in 2017. This information and resource paper, and the suite of related materials, were revised and updated by Jason Rostant Consulting. They benefitted from extensive input from members of the Department of Health and Human Services 2017–2018 IEAG, human rights advocates, members of the Inter-Departmental Project Reference Group, and clinicians. Thanks to all contributors, not all of whom are named, including Ro Allen, Tony Briffa, Dr Meg Brodie, Anna Brown, Paul Byrne-Moroney, Lee Carnie, Andrea Kapteinis, Dr Ruth McNair, Kristiina Siiankoski, Trace Williams, Sarah-Jane Miles, Michele O’Connell and Dr Agli Zavros-Orr.
Original languageEnglish
Place of PublicationMelbourne
PublisherVictorian Government Department of Health and Human Services
Commissioning bodyVictorian Government Department of Health and Human Services
Number of pages58
ISBN (Electronic)9781760696795
ISBN (Print)9781760697525
Publication statusPublished - 21 Mar 2019



  • health inequities and social determinants of health
  • health and well-being
  • health care management
  • intersex
  • surgery
  • hormone therapy
  • social justice
  • DSD
  • health inequalities
  • health
  • policy
  • report

Cite this

Jones, T., & Leonard, W. (2019). Health and wellbeing of people with intersex variations: information and resource paper. Melbourne: Victorian Government Department of Health and Human Services.