Abstract
This perspectives paper discusses patient-centered care for people living with motor neuron disease. We identify challenges and offer solutions from the patient-centered care literature for this population in frontline care, service delivery, research and health system organization. Examples from Australian and international motor neuron disease care are used to illustrate interrelated issues for practice and policy.
| Original language | English |
|---|---|
| Pages (from-to) | 91-97 |
| Number of pages | 7 |
| Journal | Neurodegenerative Disease Management |
| Volume | 10 |
| Issue number | 2 |
| Early online date | 30 Apr 2020 |
| DOIs | |
| Publication status | Published - Apr 2020 |
Keywords
- amyotrophic lateral sclerosis
- co-design
- guidelines
- patient and public involvement
- patient engagement
- policy
- shared decision-making