How can we improve patient-centered care of motor neuron disease?

Anne Hogden*, Camille Paynter, Karen Hutchinson

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

Abstract

This perspectives paper discusses patient-centered care for people living with motor neuron disease. We identify challenges and offer solutions from the patient-centered care literature for this population in frontline care, service delivery, research and health system organization. Examples from Australian and international motor neuron disease care are used to illustrate interrelated issues for practice and policy.
Original languageEnglish
Pages (from-to)91-97
Number of pages7
JournalNeurodegenerative Disease Management
Volume10
Issue number2
Early online date30 Apr 2020
DOIs
Publication statusPublished - Apr 2020

Keywords

  • amyotrophic lateral sclerosis
  • co-design
  • guidelines
  • patient and public involvement
  • patient engagement
  • policy
  • shared decision-making

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