Information infrastructure and quality person-centred support in supported accommodation: an integrative review

Maria R. Dahm, Andrew Georgiou, Lucy Bryant, Bronwyn Hemsley

Research output: Contribution to journalReview articleResearchpeer-review

Abstract

Objectives: To integrate findings on the information infrastructure for people with intellectual or developmental disability (I/DD) living in supported accommodation, to understand how documentation use impacts person-centred support. Methods: We conducted an integrative literature review. Following screening by two independent reviewers, we included English language peer-reviewed empirical studies (n = 34) on documentation use for people with I/DD in domestic-scale supported accommodation. We appraised quality and extracted information for iterative comparative thematic and content analysis. Result: All studies reported written documentation regarding either the person with disability or the residence. Eighteen studies focused on health-specific information. We identified three key themes impacting on the person-centred support; 1) level of inclusion and independence of people with I/DD, 2) the culture of support within group homes, and 3) the quality use of information. Conclusions: Information infrastructure is closely aligned with the support culture in residences and can affect whether and to what extent key stakeholders (i.e., people with I/DD, family members) are involved in making decisions about healthcare and support needs. Practice implications: Surveying local service health information infrastructure can provide crucial insights which can be leveraged to improve the safety and quality of supports provided for people living in supported accommodation.

LanguageEnglish
Pages1413-1426
Number of pages14
JournalPatient Education and Counseling
Volume102
Issue number8
DOIs
Publication statusPublished - Aug 2019

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Disabled Persons
Developmental Disabilities
Intellectual Disability
Documentation
Group Homes
Information Services
Health Services
Decision Making
Language
Delivery of Health Care
Safety
Health

Keywords

  • Disability
  • Documentation
  • Health
  • Information infrastructure
  • Integrative review
  • Personal e-health records
  • Supported accommodation

Cite this

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title = "Information infrastructure and quality person-centred support in supported accommodation: an integrative review",
abstract = "Objectives: To integrate findings on the information infrastructure for people with intellectual or developmental disability (I/DD) living in supported accommodation, to understand how documentation use impacts person-centred support. Methods: We conducted an integrative literature review. Following screening by two independent reviewers, we included English language peer-reviewed empirical studies (n = 34) on documentation use for people with I/DD in domestic-scale supported accommodation. We appraised quality and extracted information for iterative comparative thematic and content analysis. Result: All studies reported written documentation regarding either the person with disability or the residence. Eighteen studies focused on health-specific information. We identified three key themes impacting on the person-centred support; 1) level of inclusion and independence of people with I/DD, 2) the culture of support within group homes, and 3) the quality use of information. Conclusions: Information infrastructure is closely aligned with the support culture in residences and can affect whether and to what extent key stakeholders (i.e., people with I/DD, family members) are involved in making decisions about healthcare and support needs. Practice implications: Surveying local service health information infrastructure can provide crucial insights which can be leveraged to improve the safety and quality of supports provided for people living in supported accommodation.",
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Information infrastructure and quality person-centred support in supported accommodation : an integrative review. / Dahm, Maria R.; Georgiou, Andrew; Bryant, Lucy; Hemsley, Bronwyn.

In: Patient Education and Counseling, Vol. 102, No. 8, 08.2019, p. 1413-1426.

Research output: Contribution to journalReview articleResearchpeer-review

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