TY - JOUR
T1 - Information infrastructure and quality person-centred support in supported accommodation
T2 - an integrative review
AU - Dahm, Maria R.
AU - Georgiou, Andrew
AU - Bryant, Lucy
AU - Hemsley, Bronwyn
PY - 2019/8
Y1 - 2019/8
N2 - Objectives: To integrate findings on the information infrastructure for people with intellectual or developmental disability (I/DD) living in supported accommodation, to understand how documentation use impacts person-centred support. Methods: We conducted an integrative literature review. Following screening by two independent reviewers, we included English language peer-reviewed empirical studies (n = 34) on documentation use for people with I/DD in domestic-scale supported accommodation. We appraised quality and extracted information for iterative comparative thematic and content analysis. Result: All studies reported written documentation regarding either the person with disability or the residence. Eighteen studies focused on health-specific information. We identified three key themes impacting on the person-centred support; 1) level of inclusion and independence of people with I/DD, 2) the culture of support within group homes, and 3) the quality use of information. Conclusions: Information infrastructure is closely aligned with the support culture in residences and can affect whether and to what extent key stakeholders (i.e., people with I/DD, family members) are involved in making decisions about healthcare and support needs. Practice implications: Surveying local service health information infrastructure can provide crucial insights which can be leveraged to improve the safety and quality of supports provided for people living in supported accommodation.
AB - Objectives: To integrate findings on the information infrastructure for people with intellectual or developmental disability (I/DD) living in supported accommodation, to understand how documentation use impacts person-centred support. Methods: We conducted an integrative literature review. Following screening by two independent reviewers, we included English language peer-reviewed empirical studies (n = 34) on documentation use for people with I/DD in domestic-scale supported accommodation. We appraised quality and extracted information for iterative comparative thematic and content analysis. Result: All studies reported written documentation regarding either the person with disability or the residence. Eighteen studies focused on health-specific information. We identified three key themes impacting on the person-centred support; 1) level of inclusion and independence of people with I/DD, 2) the culture of support within group homes, and 3) the quality use of information. Conclusions: Information infrastructure is closely aligned with the support culture in residences and can affect whether and to what extent key stakeholders (i.e., people with I/DD, family members) are involved in making decisions about healthcare and support needs. Practice implications: Surveying local service health information infrastructure can provide crucial insights which can be leveraged to improve the safety and quality of supports provided for people living in supported accommodation.
KW - Disability
KW - Documentation
KW - Health
KW - Information infrastructure
KW - Integrative review
KW - Personal e-health records
KW - Supported accommodation
UR - http://www.scopus.com/inward/record.url?scp=85064450732&partnerID=8YFLogxK
U2 - 10.1016/j.pec.2019.03.008
DO - 10.1016/j.pec.2019.03.008
M3 - Review article
C2 - 31010602
AN - SCOPUS:85064450732
SN - 0738-3991
VL - 102
SP - 1413
EP - 1426
JO - Patient Education and Counseling
JF - Patient Education and Counseling
IS - 8
ER -