Interaction and innovation

practical strategies for inclusive consumer-driven research in health services

Maria R. Dahm, Anthony Brown, Dean Martin, Maureen Williams, Brian Osborne, Jocelyne Basseal, Mary Potter, Rae-Anne Hardie, Julia Li, Judith Thomas, Andrew Georgiou

Research output: Contribution to journalArticle

Abstract

Introduction: Despite advances in the co-creation of clinical research involving consumers in the last few decades, consumer engagement in health services research generally remains inconsistent and is too often treated as a perfunctory exercise.

Objective: Drawing on a health services study on diagnostic test result management, communication and follow-up, we: (1) outline practical strategies used to enhance the contribution of health consumer representatives across all stages of health services research, including active involvement in prioritising objectives for data analysis and participating in data analysis and the dissemination of findings; and (2) describe the impact of continued engagement of consumers on the programme of research, the interpretation of findings and their translational potential.

Key innovations: Key enabling innovations for engagement included: (1) planned opportunities for long-term consumer involvement across all stages of the research process from conception to dissemination; (2) enhanced consumer engagement capacity; (3) purposeful recruitment of appropriately trained consumers; (4) provision of support structures for active consumer involvement in research design, analysis and write-up; and (5) financial support for consumer involvement.

Impact/Conclusion: Enhancing consumer contribution and establishing inclusive research design requires a negotiated, interactive, meaningful and transparent process. As a collaborative approach, consumer-driven research involvement offers opportunities for new, often unexpected or unexplored perspectives to feature across the whole research process. In a move away from tokenistic consumer involvement, consumers and researchers who participated in this novel and immersive research project identified inclusive research as a powerful tool to enhance health services research and its translation into effective policy.
Original languageEnglish
Article numbere031555
Pages (from-to)1-6
Number of pages6
JournalBMJ Open
Volume9
Issue number12
DOIs
Publication statusPublished - 16 Dec 2019

Bibliographical note

Copyright the Author(s) 2019. Version archived for private and non-commercial use with the permission of the author/s and according to publisher conditions. For further rights please contact the publisher.

Keywords

  • consumer engagement
  • health services research
  • test result management

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