Interdisciplinary psychosocial care for families with inherited cardiovascular diseases

Colleen Caleshu, Nadine A. Kasparian, Katharine S. Edwards, Laura Yeates, Christopher Semsarian, Marco Perez, Euan Ashley, Christian J. Turner, Joshua W. Knowles, Jodie Ingles*

*Corresponding author for this work

Research output: Contribution to journalArticle

26 Citations (Scopus)

Abstract

Inherited cardiovascular diseases pose unique and complex psychosocial challenges for families, including coming to terms with life-long cardiac disease, risk of sudden death, grief related to the sudden death of a loved one, activity restrictions, and inheritance risk to other family members. Psychosocial factors impact not only mental health but also physical health and cooperation with clinical recommendations. We describe an interdisciplinary approach to the care of families with inherited cardiovascular disease, in which psychological care provided by specialized cardiac genetic counselors, nurses, and psychologists is embedded within the cardiovascular care team. We report illustrative cases and the supporting literature to demonstrate common scenarios, as well as practical guidance for clinicians working in the inherited cardiovascular disease setting.

Original languageEnglish
Pages (from-to)647-653
Number of pages7
JournalTrends in Cardiovascular Medicine
Volume26
Issue number7
DOIs
Publication statusPublished - Oct 2016
Externally publishedYes

Keywords

  • psychological wellbeing
  • genetic testing
  • hypertrophic cardiomyopathy
  • quality of life

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    Caleshu, C., Kasparian, N. A., Edwards, K. S., Yeates, L., Semsarian, C., Perez, M., ... Ingles, J. (2016). Interdisciplinary psychosocial care for families with inherited cardiovascular diseases. Trends in Cardiovascular Medicine, 26(7), 647-653. https://doi.org/10.1016/j.tcm.2016.04.010