Legal, ethical, and rights issues in the adoption and use of the “My Health Record” by people with communication disability in Australia

Bronwyn Hemsley*, Shaun McCarthy, Natalie Adams, Andrew Georgiou, Sophie Hill, Susan Balandin

*Corresponding author for this work

Research output: Contribution to journalReview article

9 Citations (Scopus)

Abstract

Background: The aim of this review was to explore the legal, ethical, and rights issues surrounding use of the Australian My Health Record (MyHR) by people with communication disability. Method: We undertook a narrative review of the legislation and research affecting the implementation of MyHR in populations with communication disability. Results: Use of MyHR by people with communication disability will require careful consideration in relation to (a) capacity and consent; (b) roles of nominated or authorised representatives in the system; and (c) the way decisions are made in relation to the use of MyHR, including supported decision-making for people with intellectual disability. Conclusion: Legal and ethical issues in the use of MyHR by people with communication disability centre on legal rights and equal access. These issues must be addressed if people with communication disability are to have full access to their legal rights and access in exercising personal choice and control in the use of MyHR.

Original languageEnglish
Pages (from-to)506-514
Number of pages9
JournalJournal of Intellectual and Developmental Disability
Volume43
Issue number4
DOIs
Publication statusPublished - 2 Oct 2018

Keywords

  • communication disability
  • communication impairments
  • eHealth records
  • ethics
  • legal issues
  • My Health Record

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