Abstract
Background: The aim of this review was to explore the legal, ethical, and rights issues surrounding use of the Australian My Health Record (MyHR) by people with communication disability. Method: We undertook a narrative review of the legislation and research affecting the implementation of MyHR in populations with communication disability. Results: Use of MyHR by people with communication disability will require careful consideration in relation to (a) capacity and consent; (b) roles of nominated or authorised representatives in the system; and (c) the way decisions are made in relation to the use of MyHR, including supported decision-making for people with intellectual disability. Conclusion: Legal and ethical issues in the use of MyHR by people with communication disability centre on legal rights and equal access. These issues must be addressed if people with communication disability are to have full access to their legal rights and access in exercising personal choice and control in the use of MyHR.
| Language | English |
|---|---|
| Pages | 506-514 |
| Number of pages | 9 |
| Journal | Journal of Intellectual and Developmental Disability |
| Volume | 43 |
| Issue number | 4 |
| DOIs | |
| Publication status | Published - 2 Oct 2018 |
Fingerprint
Keywords
- communication disability
- communication impairments
- eHealth records
- ethics
- legal issues
- My Health Record
Cite this
}
Legal, ethical, and rights issues in the adoption and use of the “My Health Record” by people with communication disability in Australia. / Hemsley, Bronwyn; McCarthy, Shaun; Adams, Natalie; Georgiou, Andrew; Hill, Sophie; Balandin, Susan.
In: Journal of Intellectual and Developmental Disability, Vol. 43, No. 4, 02.10.2018, p. 506-514.Research output: Contribution to journal › Review article › Research › peer-review
TY - JOUR
T1 - Legal, ethical, and rights issues in the adoption and use of the “My Health Record” by people with communication disability in Australia
AU - Hemsley, Bronwyn
AU - McCarthy, Shaun
AU - Adams, Natalie
AU - Georgiou, Andrew
AU - Hill, Sophie
AU - Balandin, Susan
PY - 2018/10/2
Y1 - 2018/10/2
N2 - Background: The aim of this review was to explore the legal, ethical, and rights issues surrounding use of the Australian My Health Record (MyHR) by people with communication disability. Method: We undertook a narrative review of the legislation and research affecting the implementation of MyHR in populations with communication disability. Results: Use of MyHR by people with communication disability will require careful consideration in relation to (a) capacity and consent; (b) roles of nominated or authorised representatives in the system; and (c) the way decisions are made in relation to the use of MyHR, including supported decision-making for people with intellectual disability. Conclusion: Legal and ethical issues in the use of MyHR by people with communication disability centre on legal rights and equal access. These issues must be addressed if people with communication disability are to have full access to their legal rights and access in exercising personal choice and control in the use of MyHR.
AB - Background: The aim of this review was to explore the legal, ethical, and rights issues surrounding use of the Australian My Health Record (MyHR) by people with communication disability. Method: We undertook a narrative review of the legislation and research affecting the implementation of MyHR in populations with communication disability. Results: Use of MyHR by people with communication disability will require careful consideration in relation to (a) capacity and consent; (b) roles of nominated or authorised representatives in the system; and (c) the way decisions are made in relation to the use of MyHR, including supported decision-making for people with intellectual disability. Conclusion: Legal and ethical issues in the use of MyHR by people with communication disability centre on legal rights and equal access. These issues must be addressed if people with communication disability are to have full access to their legal rights and access in exercising personal choice and control in the use of MyHR.
KW - communication disability
KW - communication impairments
KW - eHealth records
KW - ethics
KW - legal issues
KW - My Health Record
UR - http://www.scopus.com/inward/record.url?scp=85056070031&partnerID=8YFLogxK
UR - http://purl.org/au-research/grants/nhmrc/1058094
U2 - 10.3109/13668250.2017.1294249
DO - 10.3109/13668250.2017.1294249
M3 - Review article
VL - 43
SP - 506
EP - 514
JO - Journal of Intellectual and Developmental Disability
T2 - Journal of Intellectual and Developmental Disability
JF - Journal of Intellectual and Developmental Disability
SN - 1366-8250
IS - 4
ER -