Newborn Screening and Earlier Intervention with Deaf Children: Issues for the Developing World

Greg Leigh*, Anthony T. Newall, John P. Newall

*Corresponding author for this work

    Research output: Chapter in Book/Report/Conference proceedingChapterpeer-review

    2 Citations (Scopus)

    Abstract

    The universal screening of newborn children for permanent hearing loss has become a standard health and educational service in many, if not most, developed countries. Developed nations, however, represent the minority of the world's population. Universal newborn hearing screening (UNHS) is far less frequently available in developing countries where hearing loss is often disproportionately prevalent. This chapter considers the issues associated with the development of newborn screening programs in developing countries, where the vast majority of the world's deaf children live. These issues include whether to screen all newborns or to employ a targeted approach of seeking only those children with known risk factors for hearing loss, the articulation of UNHS programs with appropriate support services for children and families, and the availability and quality of subsequent intervention in developing-country contexts. The question of economic affordability and the sustainability of expensive programs of screening in very poor countries is also considered, as are the ethical issues associated with providing (or not providing) access to such programs. It is concluded that successfully implemented UNHS programs stand to provide enormous benefits to deaf and hard-of-hearing (DHH) children and their families in developing countries. It is argued that such benefits will only accrue, however, if programs are well implemented and combined with adequate and effective follow-up.

    Original languageEnglish
    Title of host publicationThe Oxford Handbook of Deaf Studies, Language, and Education
    EditorsMarc Marschark, Patricia Elizabeth Spencer
    Place of PublicationNew York
    PublisherOxford University Press
    Pages345-359
    Number of pages15
    Volume2
    ISBN (Electronic)9780199940288
    ISBN (Print)9780195390032
    DOIs
    Publication statusPublished - 18 Sep 2010

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