Outcome instruments in moderate-to-severe adult traumatic brain injury: recommendations for use in psychosocial research

Cynthia A. Honan, Skye McDonald*, Robyn Tate, Tamara Ownsworth, Leanne Togher, Jennifer Fleming, Vicki Anderson, Angela Morgan, Cathy Catroppa, Jacinta Douglas, Heather Francis, Travis Wearne, Linda Sigmundsdottir, Jennie Ponsford

*Corresponding author for this work

    Research output: Contribution to journalArticlepeer-review

    16 Citations (Scopus)

    Abstract

    Background: Traumatic brain injury (TBI) can reduce psychosocial functioning, causing relationship, family, and employment difficulties. The present study by Moving Ahead: Centre for Research Excellence (CRE) in Brain Recovery aimed to identify a set of adult outcome instruments for moderate-to-severe TBI psychosocial research. Procedure: A review of 115 instruments (identified through nomination, literature search, and international expert opinion) was conducted over a 15-month period. Eleven psychosocial areas were examined: Global Outcome, Communication, Social Cognition, Behavioural and Executive Function, Other Neuropsychological Functioning, Psychological Status, TBI-related Symptoms, Activities and Participation, Support and Relationships, Sense of Self, and Health-related Quality of Life. Individual instruments were considered against selection guidelines, and specific measures that best met the guidelines were identified as core (common across all studies), supplemental (dependent on study type) or emerging. Results: The final recommendations, organised in accordance with the World Health Organisation’s International Classification of Functioning taxonomy, comprised 56 instruments for use in early recovery, outcome, and intervention studies. Conclusion: These recommendations provide a coherent framework along with identified outcome instruments to guide psychosocial research in moderate-to-severe TBI. Adherence to the recommendations will enable data-pooling and comparison across studies and research settings facilitating consistent measurement across the lifespan.

    Original languageEnglish
    Pages (from-to)896-916
    Number of pages21
    JournalNeuropsychological Rehabilitation
    Volume29
    Issue number6
    Early online dateJul 2017
    DOIs
    Publication statusPublished - 3 Jul 2019

    Keywords

    • traumatic brain injury
    • psychosocial
    • outcome assessment
    • remediation
    • research
    • recommendations

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