Patient work from a context and time use perspective: a mixed-methods study protocol

Research output: Contribution to journalArticleResearchpeer-review

Abstract

Introduction: Self-management is widely promoted but less attention is focused on the work required from patients. To date, many individuals struggle to practise self-management. ‘Patient work’, a concept that examines the ‘work’ involved in self-management, is an approach to understanding the tasks, effort, time and context from patient perspective. The purpose of our study is to use a novel approach combining non-obstructive observations via digital devices with in-depth qualitative data about health behaviours and motivations, to capture the full range of patient work experienced by people with type 2 diabetes and chronic comorbidities. It aims to yield comprehensive insights about ‘what works’ in self-management, potentially extending to populations with other chronic health conditions.

Methods and analysis: This mixed-methods observational study involves a (1) prestudy interview and questionnaires, (2) a 24-hour period during which participants wear a camera and complete a time-use diary, and a (3) poststudy interview and study feedback. Adult participants living with type 2 diabetes with at least one chronic comorbidity will be recruited using purposive sampling to obtain a balanced gender ratio and of participants using insulin and those using only oral medication. Interviews will be analysed using thematic analysis. Data captured by digital devices, diaries and questionnaires will be used to analyse the duration, time, context and patterns of health-related behaviours.

Ethics and dissemination: The study was approved by the Macquarie University Human Research Ethics Committee for Medical Sciences (reference number 5201700718). Participants will carry a wallet-sized card that explains the purpose of the study to third parties, and can remove the camera at any stage. Before the poststudy interview begins, participants will view the camera images in private and can delete any images. Should any images be used in future publications or presentations, identifying features such as human faces and names will be obscured.
LanguageEnglish
Article numbere022163
Pages1-8
Number of pages8
JournalBMJ Open
Volume8
Issue number12
DOIs
Publication statusPublished - Dec 2018

Fingerprint

Self Care
Interviews
Type 2 Diabetes Mellitus
Comorbidity
Equipment and Supplies
Research Ethics Committees
Practice Management
Health Behavior
Health
Ethics
Names
Observational Studies
Motivation
Insulin
Population
Surveys and Questionnaires

Bibliographical note

Copyright the Author(s) 2018. Version archived for private and non-commercial use with the permission of the author/s and according to publisher conditions. For further rights please contact the publisher.

Keywords

  • body-worn cameras
  • burden of disease
  • mixed-methods study
  • passive data collection
  • patient work
  • time-use diary

Cite this

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title = "Patient work from a context and time use perspective: a mixed-methods study protocol",
abstract = "Introduction: Self-management is widely promoted but less attention is focused on the work required from patients. To date, many individuals struggle to practise self-management. ‘Patient work’, a concept that examines the ‘work’ involved in self-management, is an approach to understanding the tasks, effort, time and context from patient perspective. The purpose of our study is to use a novel approach combining non-obstructive observations via digital devices with in-depth qualitative data about health behaviours and motivations, to capture the full range of patient work experienced by people with type 2 diabetes and chronic comorbidities. It aims to yield comprehensive insights about ‘what works’ in self-management, potentially extending to populations with other chronic health conditions.Methods and analysis: This mixed-methods observational study involves a (1) prestudy interview and questionnaires, (2) a 24-hour period during which participants wear a camera and complete a time-use diary, and a (3) poststudy interview and study feedback. Adult participants living with type 2 diabetes with at least one chronic comorbidity will be recruited using purposive sampling to obtain a balanced gender ratio and of participants using insulin and those using only oral medication. Interviews will be analysed using thematic analysis. Data captured by digital devices, diaries and questionnaires will be used to analyse the duration, time, context and patterns of health-related behaviours.Ethics and dissemination: The study was approved by the Macquarie University Human Research Ethics Committee for Medical Sciences (reference number 5201700718). Participants will carry a wallet-sized card that explains the purpose of the study to third parties, and can remove the camera at any stage. Before the poststudy interview begins, participants will view the camera images in private and can delete any images. Should any images be used in future publications or presentations, identifying features such as human faces and names will be obscured.",
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author = "Kathleen Yin and Teresa Harms and Kenneth Ho and Frances Rapport and Sanjyot Vagholkar and Liliana Laranjo and Enrico Coiera and Jonathan Gershuny and Lau, {Annie Y. S.}",
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Patient work from a context and time use perspective : a mixed-methods study protocol. / Yin, Kathleen; Harms, Teresa; Ho, Kenneth; Rapport, Frances; Vagholkar, Sanjyot; Laranjo, Liliana; Coiera, Enrico; Gershuny, Jonathan; Lau, Annie Y. S.

In: BMJ Open, Vol. 8, No. 12, e022163, 12.2018, p. 1-8.

Research output: Contribution to journalArticleResearchpeer-review

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T1 - Patient work from a context and time use perspective

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AU - Rapport, Frances

AU - Vagholkar, Sanjyot

AU - Laranjo, Liliana

AU - Coiera, Enrico

AU - Gershuny, Jonathan

AU - Lau, Annie Y. S.

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