Perceptions of group peer support for people living with multiple sclerosis

Denise Mary Jepsen, Kalani Koswatta Liyanage

Research output: Contribution to journalConference paperResearch

Abstract

People living with MS often require a range of services beyond medical care, including peer support. Despite its widespread use, few studies have investigated the efficacy of peer support programs in improving the lives of people living with MS. This study aimed to determine how dysfunction impacts on perceptions of peer support and peer support facilitators, and how perceptions of peer support facilitators impacts on participants’ involvement in peer support. Analysis of responses from a confidential survey of 138 Australian participants in group peer support found that dysfunction did not predict level of involvement in peer support, but respondents’ perceptions of their facilitator predicted their positive impact, expectations and enjoyment of peer support. There was no relationship between level of dysfunction and facilitator perceptions overall. However at item level, those with higher physical dysfunction and those with lower cognitive dysfunction evaluated their facilitators more highly. These findings suggest a difference in the way people with different presentations of MS perceive peer support facilitators. Treating people with MS as a homogeneous group when looking at the efficacy of peer support may not provide an accurate representation of their experiences and more tailored programs may improve patient outcomes.

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Peer Group
Multiple Sclerosis
Surveys and Questionnaires
Cognitive Dysfunction

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@article{2a03aa9fa3124efb8e45332f0db15a12,
title = "Perceptions of group peer support for people living with multiple sclerosis",
abstract = "People living with MS often require a range of services beyond medical care, including peer support. Despite its widespread use, few studies have investigated the efficacy of peer support programs in improving the lives of people living with MS. This study aimed to determine how dysfunction impacts on perceptions of peer support and peer support facilitators, and how perceptions of peer support facilitators impacts on participants’ involvement in peer support. Analysis of responses from a confidential survey of 138 Australian participants in group peer support found that dysfunction did not predict level of involvement in peer support, but respondents’ perceptions of their facilitator predicted their positive impact, expectations and enjoyment of peer support. There was no relationship between level of dysfunction and facilitator perceptions overall. However at item level, those with higher physical dysfunction and those with lower cognitive dysfunction evaluated their facilitators more highly. These findings suggest a difference in the way people with different presentations of MS perceive peer support facilitators. Treating people with MS as a homogeneous group when looking at the efficacy of peer support may not provide an accurate representation of their experiences and more tailored programs may improve patient outcomes.",
author = "Jepsen, {Denise Mary} and {Koswatta Liyanage}, Kalani",
year = "2016",
doi = "10.5465/ambpp.2016.15320abstract",
language = "English",
volume = "2016",
journal = "Academy of Management Annual Meeting Proceedings",
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}

Perceptions of group peer support for people living with multiple sclerosis. / Jepsen, Denise Mary; Koswatta Liyanage, Kalani.

In: Academy of Management. Proceedings, Vol. 2016, No. 1, 2016.

Research output: Contribution to journalConference paperResearch

TY - JOUR

T1 - Perceptions of group peer support for people living with multiple sclerosis

AU - Jepsen, Denise Mary

AU - Koswatta Liyanage, Kalani

PY - 2016

Y1 - 2016

N2 - People living with MS often require a range of services beyond medical care, including peer support. Despite its widespread use, few studies have investigated the efficacy of peer support programs in improving the lives of people living with MS. This study aimed to determine how dysfunction impacts on perceptions of peer support and peer support facilitators, and how perceptions of peer support facilitators impacts on participants’ involvement in peer support. Analysis of responses from a confidential survey of 138 Australian participants in group peer support found that dysfunction did not predict level of involvement in peer support, but respondents’ perceptions of their facilitator predicted their positive impact, expectations and enjoyment of peer support. There was no relationship between level of dysfunction and facilitator perceptions overall. However at item level, those with higher physical dysfunction and those with lower cognitive dysfunction evaluated their facilitators more highly. These findings suggest a difference in the way people with different presentations of MS perceive peer support facilitators. Treating people with MS as a homogeneous group when looking at the efficacy of peer support may not provide an accurate representation of their experiences and more tailored programs may improve patient outcomes.

AB - People living with MS often require a range of services beyond medical care, including peer support. Despite its widespread use, few studies have investigated the efficacy of peer support programs in improving the lives of people living with MS. This study aimed to determine how dysfunction impacts on perceptions of peer support and peer support facilitators, and how perceptions of peer support facilitators impacts on participants’ involvement in peer support. Analysis of responses from a confidential survey of 138 Australian participants in group peer support found that dysfunction did not predict level of involvement in peer support, but respondents’ perceptions of their facilitator predicted their positive impact, expectations and enjoyment of peer support. There was no relationship between level of dysfunction and facilitator perceptions overall. However at item level, those with higher physical dysfunction and those with lower cognitive dysfunction evaluated their facilitators more highly. These findings suggest a difference in the way people with different presentations of MS perceive peer support facilitators. Treating people with MS as a homogeneous group when looking at the efficacy of peer support may not provide an accurate representation of their experiences and more tailored programs may improve patient outcomes.

U2 - 10.5465/ambpp.2016.15320abstract

DO - 10.5465/ambpp.2016.15320abstract

M3 - Conference paper

VL - 2016

JO - Academy of Management Annual Meeting Proceedings

T2 - Academy of Management Annual Meeting Proceedings

JF - Academy of Management Annual Meeting Proceedings

SN - 2151-6561

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