Primary progressive aphasia education and support groups: a clinical evaluation

Cathleen Taylor-Rubin; Lisa Azizi; Karen Croot; Lyndsey Nickels

doi:10.1177/1533317519895638

Primary progressive aphasia education and support groups: a clinical evaluation

Cathleen Taylor-Rubin, Lisa Azizi, Karen Croot, Lyndsey Nickels

Research output: Contribution to journal › Article › peer-review

18 Citations (Scopus)

320 Downloads (Pure)

Abstract

OBJECTIVES: To evaluate the benefits of a primary progressive aphasia (PPA) education and support session for people with PPA (pwPPA) and their caregivers. METHOD: Thirty-eight individuals (20 pwPPA, 18 caregivers) were invited to participate in the study. Twenty-five individuals (12 pwPPA, 13 caregivers) completed questionnaires before and after an education and support group session provided by a speech pathologist and a clinical psychologist. Seven individuals (2 pwPPA, 5 caregivers) participated in follow-up interviews. RESULTS: After one attendance, caregivers reported significant improvement in knowledge of PPA, strategies to manage worry and low mood, and opportunities to meet peers. Themes at interview were reduced feelings of isolation, increased feelings of support, increased knowledge of coping strategies, and improved understanding of PPA. Caregivers who had attended previous sessions reported increased feelings of well-being and support. IMPLICATIONS: Primary progressive aphasia education and support group sessions in the postdiagnostic period constitute a valuable component of comprehensive care for PPA.

Original language	English
Pages (from-to)	1-8
Number of pages	8
Journal	American Journal of Alzheimer's Disease and other Dementias
Volume	35
DOIs	https://doi.org/10.1177/1533317519895638
Publication status	Published - 1 Jan 2020

Bibliographical note

Copyright the Author(s) 2019. Version archived for private and non-commercial use with the permission of the author/s and according to publisher conditions. For further rights please contact the publisher.

Keywords

primary progressive aphasia
dementia
communication
education
support
group intervention

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10.1177/1533317519895638Licence: CC BY-NC

Publisher version (open access)Final published version, 236 KBLicence: CC BY-NC

Cite this

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title = "Primary progressive aphasia education and support groups: a clinical evaluation",

abstract = "OBJECTIVES: To evaluate the benefits of a primary progressive aphasia (PPA) education and support session for people with PPA (pwPPA) and their caregivers. METHOD: Thirty-eight individuals (20 pwPPA, 18 caregivers) were invited to participate in the study. Twenty-five individuals (12 pwPPA, 13 caregivers) completed questionnaires before and after an education and support group session provided by a speech pathologist and a clinical psychologist. Seven individuals (2 pwPPA, 5 caregivers) participated in follow-up interviews. RESULTS: After one attendance, caregivers reported significant improvement in knowledge of PPA, strategies to manage worry and low mood, and opportunities to meet peers. Themes at interview were reduced feelings of isolation, increased feelings of support, increased knowledge of coping strategies, and improved understanding of PPA. Caregivers who had attended previous sessions reported increased feelings of well-being and support. IMPLICATIONS: Primary progressive aphasia education and support group sessions in the postdiagnostic period constitute a valuable component of comprehensive care for PPA.",

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author = "Cathleen Taylor-Rubin and Lisa Azizi and Karen Croot and Lyndsey Nickels",

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doi = "10.1177/1533317519895638",

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T2 - a clinical evaluation

AU - Taylor-Rubin, Cathleen

AU - Azizi, Lisa

AU - Croot, Karen

AU - Nickels, Lyndsey

N1 - Copyright the Author(s) 2019. Version archived for private and non-commercial use with the permission of the author/s and according to publisher conditions. For further rights please contact the publisher.

PY - 2020/1/1

Y1 - 2020/1/1

N2 - OBJECTIVES: To evaluate the benefits of a primary progressive aphasia (PPA) education and support session for people with PPA (pwPPA) and their caregivers. METHOD: Thirty-eight individuals (20 pwPPA, 18 caregivers) were invited to participate in the study. Twenty-five individuals (12 pwPPA, 13 caregivers) completed questionnaires before and after an education and support group session provided by a speech pathologist and a clinical psychologist. Seven individuals (2 pwPPA, 5 caregivers) participated in follow-up interviews. RESULTS: After one attendance, caregivers reported significant improvement in knowledge of PPA, strategies to manage worry and low mood, and opportunities to meet peers. Themes at interview were reduced feelings of isolation, increased feelings of support, increased knowledge of coping strategies, and improved understanding of PPA. Caregivers who had attended previous sessions reported increased feelings of well-being and support. IMPLICATIONS: Primary progressive aphasia education and support group sessions in the postdiagnostic period constitute a valuable component of comprehensive care for PPA.

AB - OBJECTIVES: To evaluate the benefits of a primary progressive aphasia (PPA) education and support session for people with PPA (pwPPA) and their caregivers. METHOD: Thirty-eight individuals (20 pwPPA, 18 caregivers) were invited to participate in the study. Twenty-five individuals (12 pwPPA, 13 caregivers) completed questionnaires before and after an education and support group session provided by a speech pathologist and a clinical psychologist. Seven individuals (2 pwPPA, 5 caregivers) participated in follow-up interviews. RESULTS: After one attendance, caregivers reported significant improvement in knowledge of PPA, strategies to manage worry and low mood, and opportunities to meet peers. Themes at interview were reduced feelings of isolation, increased feelings of support, increased knowledge of coping strategies, and improved understanding of PPA. Caregivers who had attended previous sessions reported increased feelings of well-being and support. IMPLICATIONS: Primary progressive aphasia education and support group sessions in the postdiagnostic period constitute a valuable component of comprehensive care for PPA.

KW - primary progressive aphasia

KW - dementia

KW - communication

KW - education

KW - support

KW - group intervention

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Primary progressive aphasia education and support groups: a clinical evaluation

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Developing better treatments for language disorders (ARC)

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Primary progressive aphasia education and support groups: a clinical evaluation

Abstract

Bibliographical note

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Developing better treatments for language disorders (ARC)

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