TY - JOUR
T1 - Psychosocial functioning following moderate-to-severe pediatric traumatic brain injury
T2 - recommended outcome instruments for research and remediation studies
AU - Wearne, Travis
AU - Anderson, Vicki
AU - Catroppa, Cathy
AU - Morgan, Angela
AU - Ponsford, Jennie
AU - Tate, Robyn
AU - Ownsworth, Tamara
AU - Togher, Leanne
AU - Fleming, Jennifer
AU - Douglas, Jacinta
AU - Docking, Kimberley
AU - Sigmundsdottir, Linda
AU - Francis, Heather
AU - Honan, Cynthia
AU - McDonald, Skye
PY - 2020
Y1 - 2020
N2 - Psychosocial functioning is compromised following pediatric traumatic brain injury (TBI), with the past few decades witnessing a proliferation of research examining the effect of childhood brain insult on a range of psychosocial outcomes. This paper describes the systematic recommendation of outcome instruments to address psychosocial functioning following pediatric TBI. A total of 65 instruments across 11 psychosocial areas (i.e., Global Outcome, Communication, Social Cognition, Behavioural and Executive Function, Other Neuropsychological Functioning, Psychological Status, TBI-related Symptoms, Activities and Participation, Support and Relationships, Sense of Self, and Health-Related Quality of Life) were reviewed using various assessment methods, including working groups, literature searches, comparisons with selection guidelines, and international expert opinion. Each measure was reviewed for its usefulness across early recovery, intervention, and outcome related studies. 34 instruments were recommended and classified according to the World Health Organization’s International Classification of Functioning, Disability and Health taxonomy and categorised by psychosocial area. This compilation provides a common framework to guide the activities of clinicians and researchers in psychosocial rehabilitation. It is anticipated that these will foster a multidisciplinary approach to psychosocial dysfunction to enhance the evaluation, prediction, and improvement of functional outcomes for those with pediatric TBI.
AB - Psychosocial functioning is compromised following pediatric traumatic brain injury (TBI), with the past few decades witnessing a proliferation of research examining the effect of childhood brain insult on a range of psychosocial outcomes. This paper describes the systematic recommendation of outcome instruments to address psychosocial functioning following pediatric TBI. A total of 65 instruments across 11 psychosocial areas (i.e., Global Outcome, Communication, Social Cognition, Behavioural and Executive Function, Other Neuropsychological Functioning, Psychological Status, TBI-related Symptoms, Activities and Participation, Support and Relationships, Sense of Self, and Health-Related Quality of Life) were reviewed using various assessment methods, including working groups, literature searches, comparisons with selection guidelines, and international expert opinion. Each measure was reviewed for its usefulness across early recovery, intervention, and outcome related studies. 34 instruments were recommended and classified according to the World Health Organization’s International Classification of Functioning, Disability and Health taxonomy and categorised by psychosocial area. This compilation provides a common framework to guide the activities of clinicians and researchers in psychosocial rehabilitation. It is anticipated that these will foster a multidisciplinary approach to psychosocial dysfunction to enhance the evaluation, prediction, and improvement of functional outcomes for those with pediatric TBI.
KW - traumatic brain injury
KW - pediatric
KW - psychosocial
KW - outcome assessment
KW - outcome instuments
KW - remediation
KW - research
KW - recommendations
UR - http://www.scopus.com/inward/record.url?scp=85054638918&partnerID=8YFLogxK
U2 - 10.1080/09602011.2018.1531768
DO - 10.1080/09602011.2018.1531768
M3 - Article
C2 - 30296904
AN - SCOPUS:85054638918
SN - 0960-2011
VL - 30
SP - 973
EP - 987
JO - Neuropsychological Rehabilitation
JF - Neuropsychological Rehabilitation
IS - 5
ER -