TY - JOUR
T1 - Reported clinical incidents of children with intellectual disability
T2 - a qualitative analysis
AU - Ong, Natalie
AU - Mimmo, Laurel
AU - Barnett, Diana
AU - Long, Janet
AU - Weise, Janelle
AU - Walton, Merrilyn
N1 - Copyright the Author(s) 2022. Version archived for private and non-commercial use with the permission of the author/s and according to publisher conditions. For further rights please contact the publisher.
PY - 2022/11
Y1 - 2022/11
N2 - Aim: To qualitatively explore reported clinical incidents of children with intellectual disability aged 0 to 18 years. Method: A secondary qualitative evaluation using latent content analysis was used on retrospective hospital incident management reporting data (1st January–31st December 2017) on 1367 admissions for 1018 randomly selected patients admitted to two tertiary children's hospitals in New South Wales, Australia. Sex and age at admission in children with and without intellectual disability: 83 (43.7%) versus 507 (43.1%) females and 107 (56.3%) versus 670 (56.9%) males, p=0.875; median age 3 years (0–18y) versus 4 years (0–18y), p=0.122. Of these, 44 patient safety incident reports for children with intellectual disability (sex, SD, and range) and 167 incident reports for children without intellectual disability (sex, SD, and range) were found and analysed. Results: Ten themes were synthesized from the data and represented the groups with and without intellectual disability. Children with intellectual disability had a significantly higher proportion of care issues identified by their parents. They also had higher rates of multiple reported clinical incidents per admission compared to children without intellectual disability. Interpretation: Mechanisms to advocate and raise patient safety issues for children with intellectual disability are needed. Partnerships with parents and training of staff in reporting clinical incidents for this population would enhance the embedding of reasonable adaptations into incident management systems for ongoing monitoring and improvement. What this paper adds: Children with intellectual disability experienced multiple patient safety incidents per admission compared to children without intellectual disability. Children with intellectual disability had significantly increased rates of parent-identified incidents. Issues with medication, communication, delays in diagnosis and treatment, and identification of deterioration were noted.
AB - Aim: To qualitatively explore reported clinical incidents of children with intellectual disability aged 0 to 18 years. Method: A secondary qualitative evaluation using latent content analysis was used on retrospective hospital incident management reporting data (1st January–31st December 2017) on 1367 admissions for 1018 randomly selected patients admitted to two tertiary children's hospitals in New South Wales, Australia. Sex and age at admission in children with and without intellectual disability: 83 (43.7%) versus 507 (43.1%) females and 107 (56.3%) versus 670 (56.9%) males, p=0.875; median age 3 years (0–18y) versus 4 years (0–18y), p=0.122. Of these, 44 patient safety incident reports for children with intellectual disability (sex, SD, and range) and 167 incident reports for children without intellectual disability (sex, SD, and range) were found and analysed. Results: Ten themes were synthesized from the data and represented the groups with and without intellectual disability. Children with intellectual disability had a significantly higher proportion of care issues identified by their parents. They also had higher rates of multiple reported clinical incidents per admission compared to children without intellectual disability. Interpretation: Mechanisms to advocate and raise patient safety issues for children with intellectual disability are needed. Partnerships with parents and training of staff in reporting clinical incidents for this population would enhance the embedding of reasonable adaptations into incident management systems for ongoing monitoring and improvement. What this paper adds: Children with intellectual disability experienced multiple patient safety incidents per admission compared to children without intellectual disability. Children with intellectual disability had significantly increased rates of parent-identified incidents. Issues with medication, communication, delays in diagnosis and treatment, and identification of deterioration were noted.
UR - http://www.scopus.com/inward/record.url?scp=85132615930&partnerID=8YFLogxK
U2 - 10.1111/dmcn.15262
DO - 10.1111/dmcn.15262
M3 - Article
C2 - 35578400
SN - 0012-1622
VL - 64
SP - 1359
EP - 1365
JO - Developmental Medicine and Child Neurology
JF - Developmental Medicine and Child Neurology
IS - 11
ER -