Representation of marginalised populations in digital surveillance for notifiable conditions in Australia: a systematic review

N. Dias-Karunaratne, L. Whop, J. Ward, C. Vujovich-Dunn, J. Amin, A. Dakiniewich, A. Dyda*

*Corresponding author for this work

Research output: Contribution to journalReview articlepeer-review

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Aim: This study aims to establish whether digital surveillance methods for notifiable diseases in Australia collect and report data in relation to marginalised populations. Methods: The literature was systematically reviewed to identify primary research studies published between January 2005 and July 2023. Studies were included if they described an Australian digital surveillance system for notifiable conditions. The results were synthesised with a focus on evaluating the collection and reporting of data in relation to marginalised populations. Results: A total of 13 articles reporting on seven surveillance systems were identified. Influenza and adverse events following immunisation were the two most common notifiable conditions monitored. A total of six surveillance systems encompassing 16 articles reported information on sub-populations. Of these, three surveillance systems (nine articles) included data on marginalised populations. Conclusion: The data collected or reported in relation to sub-groups that characterise diversity in terms of health care needs, access, and marginalised populations are minimal. It is recommended that a set of equity and reporting principles is established for the future creation and use of any digital surveillance system.

Original languageEnglish
Pages (from-to)162-173
Number of pages12
JournalPerspectives in Public Health
Issue number3
Publication statusPublished - May 2024

Bibliographical note

Copyright the Royal Society for Public Health 2024. Version archived for private and non-commercial use with the permission of the author/s and according to publisher conditions. For further rights please contact the publisher.


  • Australia
  • communicable diseases
  • digital surveillance


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