Service satisfaction and helpfulness ratings, mental health literacy, and help seeking barriers of carers of individuals with dual disabilities

Joyce Man, Maria Kangas

    Research output: Contribution to journalArticlepeer-review

    8 Citations (Scopus)

    Abstract

    Background
    Carer mental health literacy and help seeking are areas that are not well researched in the intellectual disability field. This study aimed to explore the above including service utilization experiences of Australian parents with an offspring with an intellectual disability and a comorbid psychiatric disorder.

    Method
    Forty‐one parents took part in an online survey assessing satisfaction and helpfulness ratings of received services. Twenty‐six parents also completed items to assess mental health literacy and attitudinal barriers to help seeking.

    Results
    Parents showed good mental health literacy with depression and with challenging behaviour associated with autism and poorer literacy with mixed presentations. Few attitudinal barriers to help seeking were reported. Parents reported varied helpfulness and satisfaction ratings with disability and mental health services.

    Conclusions
    Parents are capable of recognizing the need to seek professional help for their offspring. Implications for service coordination, provision and carer involvement are discussed.
    Original languageEnglish
    Pages (from-to)184-193
    Number of pages10
    JournalJournal of Applied Research in Intellectual Disabilities
    Volume32
    Issue number1
    Early online date2018
    DOIs
    Publication statusPublished - Jan 2019

    Keywords

    • carer
    • help seeking
    • intellectual disability
    • literacy
    • mental health
    • service

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