Survivorship care for people with colorectal cancer: a population-based survey of patients' experiences and preferences

Jane Young, Ivana Durcinoska, Kris Rogers, Mikaela Jorgensen, Michael J. Solomon

Research output: Contribution to journalMeeting abstractpeer-review

Abstract

Background: Colorectal cancer (CRC) is the third most commonly diagnosed cancer worldwide, with almost 1.4 million new cases in 2012. The number of cases is increasing with population growth and ageing. As a result of improved screening, earlier detection, and increased treatment efficacy, relative survival has improved markedly so that CRC is currently the second most prevalent cancer worldwide, with over 3.5 million survivors alive at 5 years after diagnosis. This increasing prevalence, together with substantial differences in individual patients' response to cancer and its treatment and a paucity of rigorous evidence about effective and cost-effective models of service delivery, means that the provision of survivorship care is a major challenge for cancer services.

Survivorship care includes surveillance for recurrent and new cancers, management of late and long term side-effects and secondary prevention. This study investigated received and recommended survivorship care among a population-based sample of colorectal cancer survivors across New South Wales (NSW) as part of the NSW Bowel Cancer Care Study.

Methods: Patients with newly diagnosed colorectal cancer, notified to the NSW Central Cancer Registry between 29 November 2012 and 31 May 2013 and who were 4–6 months post-diagnosis were asked to complete questionnaires on study enrolment and at 12 months post-diagnosis. Questions about experiences of, and preferences for, survivorship care were included in the follow up questionnaire.

Results: Of 1027 patients contacted, 560 participated (55%) at baseline. Respondents had a mean age of 68 years, 60% were male and 28% had rectal cancer. Follow up questionnaires were received from 484 participants (86% of baseline participants, 47% of invited sample). Patterns and predictors of guideline-recommended survivorship care, and patients' preferences for ongoing care, will be presented.

Conclusions:  These findings will provide an empirical basis for the development of targeted strategies to improve the implementation of evidence-based survivorship care.
Original languageEnglish
Article numberS58
Pages (from-to)26
Number of pages1
JournalAsia-Pacific Journal of Clinical Oncology
Volume10
Issue numberSupplement 7
Publication statusPublished - Nov 2014
Externally publishedYes
EventSydney cancer conference (2014) - Sydney, Australia
Duration: 26 Nov 201428 Nov 2014

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