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The lived experience and legacy of pragmatics for deaf and hard of hearing children

Alys Young*, Amy Szarkowski, Emma Ferguson-Coleman, Darlene Freeman, Candace Lindow-Davies, Ron Davies, Karen Hopkins, Ian Noon, Katherine Rogers, Jane Russell, Leeanne Seaver, Kathy Vesey

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

Abstract

In this article, we discuss deaf and hard of hearing (DHH) children's pragmatic difficulties and strengths from within the lived experiences of 5 hearing parents of DHH children and 5 DHH adults (one of whom is also a parent of a deaf child). We define lived experience as both a specific form of knowledge (first-hand stories from everyday life) and a unique way of knowing (reflecting and telling from insider perspectives). The parents and DHH adults involved coauthored the article alongside 2 experienced researcher-practitioners. Key themes include what pragmatic challenges feel like for a DHH person, why they arise, how they might result in longer-term consequences (such as implications for well-being) that can continue into adulthood, what might be pragmatic strengths in this population, and what might be done to ameliorate pragmatic difficulties. We end the article with reflections on the significance of individual parents and DHH adults in the coproduction and execution of research on this topic and make suggestions for future directions of inquiry.
Original languageEnglish
Article number0242K
Pages (from-to)S304-S309
Number of pages6
JournalPediatrics
Volume146
Issue numberS3
DOIs
Publication statusPublished - Nov 2020
Externally publishedYes

Bibliographical note

Copyright 2020 the American Academy of Pediatrics. Version archived for private and non-commercial use with the permission of the author/s and according to publisher conditions. For further rights please contact the publisher.

Keywords

  • pragmatics
  • deaf
  • hard of hearing
  • co-authoring
  • adults

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