The quality of care for Australian children with autism spectrum disorders

K. Churruca; L. A. Ellis; J. C. Long; C. Pomare; L. K. Wiles; G. Arnolda; H. P. Ting; S. Woolfenden; V. Sarkozy; C. de Wet; P. Hibbert; J. Braithwaite; CareTrack Kids Investigative Team

doi:10.1007/s10803-019-04195-7

The quality of care for Australian children with autism spectrum disorders

K. Churruca^*, L. A. Ellis, J. C. Long, C. Pomare, L. K. Wiles, G. Arnolda, H. P. Ting, S. Woolfenden, V. Sarkozy, C. de Wet, P. Hibbert, J. Braithwaite, CareTrack Kids Investigative Team

^*Corresponding author for this work

Research output: Contribution to journal › Article › peer-review

1 Citation (Scopus)

Abstract

Knowledge about the quality of care delivered to children with autism spectrum disorders (ASD) in relation to that recommended by clinical practice guidelines (CPGs) is limited. ASD care quality indicators were developed from CPGs and validated by experts, then used to assess the quality of care delivered by general practitioners (GPs) and pediatricians in Australia. Data were retrospectively collected from the medical records of 228 children (≤ 15 years) with ASD for 2012–2013. Overall quality of care was high, but with considerable variation among indicators, and between GPs and pediatricians—e.g., GPs were less likely to complete the assessment care bundle (61%; 95% CI 21–92). Findings highlight potential areas for improvement in the need for standardized criteria for diagnosis.

Original language	English
Pages (from-to)	4919–4928
Number of pages	10
Journal	Journal of Autism and Developmental Disorders
Volume	49
Issue number	12
Early online date	31 Aug 2019
DOIs	https://doi.org/10.1007/s10803-019-04195-7
Publication status	Published - Dec 2019

Keywords

Autism spectrum disorder
Clinical practice guideline
General practice
Guideline adherence
Pediatrics
Quality of health care

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10.1007/s10803-019-04195-7

Cite this

Churruca, K., Ellis, L. A., Long, J. C., Pomare, C., Wiles, L. K., Arnolda, G., Ting, H. P., Woolfenden, S., Sarkozy, V., de Wet, C., Hibbert, P., Braithwaite, J., & CareTrack Kids Investigative Team (2019). The quality of care for Australian children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 49(12), 4919–4928. https://doi.org/10.1007/s10803-019-04195-7

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title = "The quality of care for Australian children with autism spectrum disorders",

abstract = "Knowledge about the quality of care delivered to children with autism spectrum disorders (ASD) in relation to that recommended by clinical practice guidelines (CPGs) is limited. ASD care quality indicators were developed from CPGs and validated by experts, then used to assess the quality of care delivered by general practitioners (GPs) and pediatricians in Australia. Data were retrospectively collected from the medical records of 228 children (≤ 15 years) with ASD for 2012–2013. Overall quality of care was high, but with considerable variation among indicators, and between GPs and pediatricians—e.g., GPs were less likely to complete the assessment care bundle (61%; 95% CI 21–92). Findings highlight potential areas for improvement in the need for standardized criteria for diagnosis.",

keywords = "Autism spectrum disorder, Clinical practice guideline, General practice, Guideline adherence, Pediatrics, Quality of health care",

author = "K. Churruca and Ellis, {L. A.} and Long, {J. C.} and C. Pomare and Wiles, {L. K.} and G. Arnolda and Ting, {H. P.} and S. Woolfenden and V. Sarkozy and {de Wet}, C. and P. Hibbert and J. Braithwaite and {CareTrack Kids Investigative Team}",

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journal = "Journal of Autism and Developmental Disorders",

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Churruca, K , Ellis, LA , Long, JC , Pomare, C , Wiles, LK , Arnolda, G, Ting, HP, Woolfenden, S, Sarkozy, V, de Wet, C, Hibbert, P , Braithwaite, J & CareTrack Kids Investigative Team 2019, 'The quality of care for Australian children with autism spectrum disorders', Journal of Autism and Developmental Disorders, vol. 49, no. 12, pp. 4919–4928. https://doi.org/10.1007/s10803-019-04195-7

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AU - Churruca, K.

AU - Ellis, L. A.

AU - Long, J. C.

AU - Pomare, C.

AU - Wiles, L. K.

AU - Arnolda, G.

AU - Ting, H. P.

AU - Woolfenden, S.

AU - Sarkozy, V.

AU - de Wet, C.

AU - Hibbert, P.

AU - Braithwaite, J.

AU - CareTrack Kids Investigative Team

PY - 2019/12

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N2 - Knowledge about the quality of care delivered to children with autism spectrum disorders (ASD) in relation to that recommended by clinical practice guidelines (CPGs) is limited. ASD care quality indicators were developed from CPGs and validated by experts, then used to assess the quality of care delivered by general practitioners (GPs) and pediatricians in Australia. Data were retrospectively collected from the medical records of 228 children (≤ 15 years) with ASD for 2012–2013. Overall quality of care was high, but with considerable variation among indicators, and between GPs and pediatricians—e.g., GPs were less likely to complete the assessment care bundle (61%; 95% CI 21–92). Findings highlight potential areas for improvement in the need for standardized criteria for diagnosis.

AB - Knowledge about the quality of care delivered to children with autism spectrum disorders (ASD) in relation to that recommended by clinical practice guidelines (CPGs) is limited. ASD care quality indicators were developed from CPGs and validated by experts, then used to assess the quality of care delivered by general practitioners (GPs) and pediatricians in Australia. Data were retrospectively collected from the medical records of 228 children (≤ 15 years) with ASD for 2012–2013. Overall quality of care was high, but with considerable variation among indicators, and between GPs and pediatricians—e.g., GPs were less likely to complete the assessment care bundle (61%; 95% CI 21–92). Findings highlight potential areas for improvement in the need for standardized criteria for diagnosis.

KW - Autism spectrum disorder

KW - Clinical practice guideline

KW - General practice

KW - Guideline adherence

KW - Pediatrics

KW - Quality of health care

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ER -

The quality of care for Australian children with autism spectrum disorders

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The appropriateness of healthcare delivered to Australian children: CareTrack Kids

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The quality of care for Australian children with autism spectrum disorders

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The appropriateness of healthcare delivered to Australian children: CareTrack Kids

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