Tourette's syndrome and the school experience: a qualitative study of children's and parents' perspectives

This article reports on research exploring the school experiences of 26 children (aged between 8 and 15.5 years) diagnosed with Tourette's Syndrome. The research adopted a qualitative methodology, and is reported here from the perspective of both the parents and the children themselves. Three different groups of families emerged: those who were moderately satisfied in their experiences with the school system, those who were dissatisfied in their experiences with the school system, and families who were so completely dissatisfied that they removed their child from the school system altogether. There was no participating child or parent who was entirely satisfied in their experiences with teachers and the school. Themes that emerged for each of these groups are discussed. This research stresses the importance of teacher understanding and flexibility, as well as parent/school communication. The facilitation of social acceptance for a child with Tourette's Syndrome is also extremely important to successful classroom integration.