Understanding and living with primary progressive aphasia: current progress and challenges for the future

Lyndsey Nickels, Karen Croot

    Research output: Chapter in Book/Report/Conference proceedingChapter


    Background: Primary progressive aphasia (PPA) is a progressive language disorder in which aphasia is the first and most prominent symptom of degenerative brain disease. PPA has received increasing attention in the scientific literature over the past 30 years, but there remains a relative lack of awareness and understanding of it in the wider clinical community. As editors of the volume, Clinical Perspectives on Primary Progressive Aphasia, we invited the contributing authors to provide an up-to-date survey of research on a range of topics that are relevant to clinical practice in PPA.Aims: The aim of this article is to address some key questions that may arise when an individual receives a diagnosis of PPA and to direct readers to additional sources of information in this volume and elsewhere that will allow them to gain further knowledge about topics of interest.Main Contribution: We address the following questions: (1) What is PPA? (2) How is PPA diagnosed? (3) What happens to a person's language when they have PPA? (4) How will the disease progress over time? (5) How does PPA impact a person's life and the life of their family and friends? (6) What treatments and support are available? (7) What other services should we be providing?Conclusions: Considerable progress has been made in our understanding of PPA and the relationship between the symptomatology, progression, pathology, and genetics of PPA. However, there are many challenges remaining, particularly in terms of ensuring that people with PPA and their families and friends receive optimal information and support at diagnosis and appropriate interventions and/or management strategies throughout their journey with PPA.
    Original languageEnglish
    Title of host publicationClinical perspectives on primary progressive aphasia
    EditorsLyndsey Nickels, Karen Croot
    Place of PublicationLondon ; New York
    PublisherPsychology Press
    Number of pages15
    ISBN (Print)9781138853560
    Publication statusPublished - 2015

    Publication series

    NameBrain, behavior, and cognitition
    PublisherPsychology Press

    Bibliographical note

    Previously published in Aphasiology, 28(8-9), p.885-899 (2014), http://dx.doi.org/10.1080/02687038.2014.933521 (2013005524)


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