Understanding Hong Kong Chinese Families’ Experiences of an Autism/ASD Diagnosis

Kathleen Tait*, Francis Fung, Aihua Hu, Naomi Sweller, Wei Wang

*Corresponding author for this work

Research output: Contribution to journalArticle

12 Citations (Scopus)

Abstract

Little is known about the experience of Chinese parents of children diagnosed with autism spectrum disorders (ASD) living in the Hong Kong Special Administrative Region. Seventy-five parents of children (aged 6 months–18 years) with ASD diagnoses completed the Family Quality of Life Scale. Forty-five parents from the original surveyed cohort, also participated in semi-structured interviews. Parents’ perceptions of their child’s disability were influenced both by their cultural background and by the limited and expensive, pre- and post-diagnostic services available. Longer waiting times to diagnosis were associated with lower emotional well-being and perceived disability-related support. Clinicians are encouraged to become part of the support network for parents of children with ASD, to help parents to adjust to caring for their child.

Original languageEnglish
Pages (from-to)1164-1183
Number of pages20
JournalJournal of Autism and Developmental Disorders
Volume46
Issue number4
DOIs
Publication statusPublished - 1 Apr 2016

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