Use of guidelines when planning home care of a girl with severe congenital myopathy

Kelly Gray, David Isaacs*, Henry Kilham, Bernadette Tobin, Karen Waters

*Corresponding author for this work

Research output: Contribution to journalReview articlepeer-review

Abstract

We use issues that arose in the management of a 4-year old girl with a congenital myopathy to consider the tension between respecting the choices and decisions of the child's parents and applying clinical practice guidelines that emphasise minimising risk to the child. This case raises the issue of when it is reasonable to override parents' choice of management options.

Original languageEnglish
Pages (from-to)7-10
Number of pages4
JournalJournal of Paediatrics and Child Health
Volume52
Issue number1
DOIs
Publication statusPublished - 1 Jan 2016
Externally publishedYes

Keywords

  • autonomy
  • best interest
  • guideline
  • palliative care
  • quality of life

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