Use of guidelines when planning home care of a girl with severe congenital myopathy

Kelly Gray; David Isaacs; Henry Kilham; Bernadette Tobin; Karen Waters

doi:10.1111/jpc.13065

Use of guidelines when planning home care of a girl with severe congenital myopathy

Kelly Gray, David Isaacs^*, Henry Kilham, Bernadette Tobin, Karen Waters

^*Corresponding author for this work

Research output: Contribution to journal › Review article › peer-review

Abstract

We use issues that arose in the management of a 4-year old girl with a congenital myopathy to consider the tension between respecting the choices and decisions of the child's parents and applying clinical practice guidelines that emphasise minimising risk to the child. This case raises the issue of when it is reasonable to override parents' choice of management options.

Original language	English
Pages (from-to)	7-10
Number of pages	4
Journal	Journal of Paediatrics and Child Health
Volume	52
Issue number	1
DOIs	https://doi.org/10.1111/jpc.13065
Publication status	Published - 1 Jan 2016
Externally published	Yes

Keywords

autonomy
best interest
guideline
palliative care
quality of life

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10.1111/jpc.13065

Cite this

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AB - We use issues that arose in the management of a 4-year old girl with a congenital myopathy to consider the tension between respecting the choices and decisions of the child's parents and applying clinical practice guidelines that emphasise minimising risk to the child. This case raises the issue of when it is reasonable to override parents' choice of management options.

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KW - best interest

KW - guideline

KW - palliative care

KW - quality of life

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Use of guidelines when planning home care of a girl with severe congenital myopathy

Abstract

Keywords

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