Validation of the quality of life in childhood epilepsy questionnaire in American epilepsy patients

Mark Sabaz, John A. Lawson, David R. Cairns, Michael S. Duchowny, Trevor J. Resnick, Patricia M. Dean, Anne M E Bye*

*Corresponding author for this work

    Research output: Contribution to journalArticlepeer-review

    105 Citations (Scopus)

    Abstract

    The aim of this study was to adapt the Australian Quality of Life in Childhood Epilepsy Questionnaire (QOLCE) and determine its psychometric properties in a North American population. Participants were North American families with children diagnosed with epilepsy. Parents were asked to complete the American QOLCE (USQOLCE) and the Child Health Questionnaire (CHQ). Seventy-one families completed the USQOLCE. The internal consistency reliability of the subscales was good. USQOLCE subscales correlated highly with theoretically similar subscales contained in the CHQ. Theoretically dissimilar subscales on the two instruments did not correlate as well. USQOLCE correlated significantly with a parental rating of seizure severity and an independent measure of degree of postoperative seizure control. This study demonstrated that the USQOLCE is suitable for a North American population with evidence of its reliability and validity including its sensitivity to seizure burden.

    Original languageEnglish
    Pages (from-to)680-691
    Number of pages12
    JournalEpilepsy and Behavior
    Volume4
    Issue number6
    DOIs
    Publication statusPublished - Dec 2003

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