Abstract
Background: Emerging digital health approaches could play a role in better personalized palliative care.
Aim: We conducted a feasibility study testing wearable sensor (WS)-triggered ecological momentary assessments (EMAs) and electronic patient-reported outcomes in community palliative care with patient–caregiver dyads.
Design: All wore consumer-grade WS for five weeks. Sensor-detected “stress” (heart rate variability algorithm) that passed individualized thresholds triggered a short smartphone survey. Daily sleep surveys, weekly symptom surveys (Integrated Palliative care Outcome Scale), and a poststudy experience survey were conducted.
Setting/Participants: Fifteen dyads (n = 30) were recruited from an outpatient palliative care clinic for people with cancer.
Results: Daytime sensor wear-time had 73% adherence. Participants perceived value in this support. Quantity and severity of “stress” events were higher in patients. Sleep disturbance was similar but for different reasons: patients (physical symptoms) and caregivers (worrying about the patient).
Conclusions: EMAs are feasible and valued in community palliative care.
Aim: We conducted a feasibility study testing wearable sensor (WS)-triggered ecological momentary assessments (EMAs) and electronic patient-reported outcomes in community palliative care with patient–caregiver dyads.
Design: All wore consumer-grade WS for five weeks. Sensor-detected “stress” (heart rate variability algorithm) that passed individualized thresholds triggered a short smartphone survey. Daily sleep surveys, weekly symptom surveys (Integrated Palliative care Outcome Scale), and a poststudy experience survey were conducted.
Setting/Participants: Fifteen dyads (n = 30) were recruited from an outpatient palliative care clinic for people with cancer.
Results: Daytime sensor wear-time had 73% adherence. Participants perceived value in this support. Quantity and severity of “stress” events were higher in patients. Sleep disturbance was similar but for different reasons: patients (physical symptoms) and caregivers (worrying about the patient).
Conclusions: EMAs are feasible and valued in community palliative care.
| Original language | English |
|---|---|
| Pages (from-to) | 980-985 |
| Number of pages | 6 |
| Journal | Journal of Palliative Medicine |
| Volume | 26 |
| Issue number | 7 |
| Early online date | 3 May 2023 |
| DOIs | |
| Publication status | Published - 1 Jul 2023 |
Keywords
- cancer
- caregiver
- digital health
- dyad
- ecological momentary assessment
- palliative care
- patient-reported outcomes
- wearable devices