TY - JOUR
T1 - What is aphasia? Results of an international survey
AU - Simmons-Mackie, Nina
AU - Code, Chris
AU - Armstrong, Elizabeth
AU - Stiegler, Lillian
AU - Elman, Roberta J.
PY - 2002
Y1 - 2002
N2 - Background: Although the literature implies that there is limited public awareness of aphasia, direct data have been lacking. Aims: Therefore, a survey was undertaken to sample public awareness of aphasia. Methods & Procedures: A face-to-face survey of individuals in public places in England, the USA, and Australia was undertaken. A total of 978 individuals were surveyed. Data were analysed to determine the number of informants who had ''heard of aphasia'' and the number with ''basic knowledge of aphasia''. In addition, characteristics of informants were analysed. Outcomes & Results: Of the individuals surveyed, 133 said they had heard of aphasia (13.6%), but only 53 (5.4%) met the criterion of having ''basic knowledge of aphasia''. Conclusions: These findings lend support to the notion that the public lacks awareness or understanding of aphasia. As public awareness can affect funding, quality of services, and public acceptance of individuals with a disorder, public awareness and advocacy campaigns are needed.
AB - Background: Although the literature implies that there is limited public awareness of aphasia, direct data have been lacking. Aims: Therefore, a survey was undertaken to sample public awareness of aphasia. Methods & Procedures: A face-to-face survey of individuals in public places in England, the USA, and Australia was undertaken. A total of 978 individuals were surveyed. Data were analysed to determine the number of informants who had ''heard of aphasia'' and the number with ''basic knowledge of aphasia''. In addition, characteristics of informants were analysed. Outcomes & Results: Of the individuals surveyed, 133 said they had heard of aphasia (13.6%), but only 53 (5.4%) met the criterion of having ''basic knowledge of aphasia''. Conclusions: These findings lend support to the notion that the public lacks awareness or understanding of aphasia. As public awareness can affect funding, quality of services, and public acceptance of individuals with a disorder, public awareness and advocacy campaigns are needed.
U2 - 10.1080/02687030244000185
DO - 10.1080/02687030244000185
M3 - Article
SN - 0268-7038
VL - 16
SP - 837
EP - 848
JO - Aphasiology
JF - Aphasiology
IS - 8
ER -